Showing posts from February, 2014

How life has changed

They took aspirin, ate blue cheese, bread and dripping, raw egg products, loads of bacon and processed meat, tuna from a can, and didn't get tested for diabetes or cervical cancer.

Then after that trauma, our baby cots were covered with bright coloured lead-based paints.

We had no childproof lids on medicine bottles, doors or cabinets and when we rode our bikes, we had no helmets or shoes, not to mention, the risks we took hitchhiking.

As children, we would ride in cars with no seat belts or air bags.

We drank water from the garden hose and NOT from a bottle.

Take away food was limited to fish and chips, no pizza shops, McDonalds , KFC, Subway or Nandos.

Even though all the shops closed at 6.00pm and didn't open on a Sunday, somehow we didn't starve to death!

We shared one soft drink with four friends, from one bottle and NO ONE actually died from this.

We could collect old drink bottles and cash them in at the corner store and buy Toffees, Gobstoppers and Bubble Gum.

Too old to get lifesaving drugs

Too old to get lifesaving drugs: Anger at plan to deny elderly treatment if you've had a 'fair innings'
Patients who have had a ‘fair innings’ could be denied life-saving drugs under proposed health reforms.
The plans would mean experts taking into account whether there is a ‘wider societal benefit’ to giving a patient crucial medicines.
The NHS rationing body, Nice, fears the Department of Health proposals could see younger people deemed a higher priority for drug treatments because they have more years ahead of them – potentially contributing more to the economy – than the elderly.
Controversial: The NHS rationing body, Nice, fears the Department of Health proposals could see younger people deemed a higher priority for drug treatments (file picture)
Doctors, MPs and campaigners last night condemned the plans as ‘barking mad’.
The move will also fuel fears that the elderly are receiving a worse deal from the health service than the young.
Cancer charities have already warned …

Dementia Charities

There has been a lot of discussion over the Internet about the role of Dementia charities, and who is best  to cover our problems. Some of this is starting to get very political and in some cases annoying

I guess before going any further I do think that there is a lot of politics involved in this subject, and if you are not careful you could be dragged into something you don't want.

I have worked with the Alzheimer's Society and the Lewy Body Society, where I am honoured to be an Ambassador.

The Alzheimer's Society in the UK like other charities claim to cover all forms of the illness, but its up to the person with the illness as to what they want and no one else can tell them what to do.

But I personally feel that if you want to get all of the information concerning "your own form" of the illness, you should then seek out a charity which covers, and which is totally dedicated to that form of the illness.

I say this because they are usually backed up by professi…

Blog Comments

I would just like to answer a few comments, I have received over the last few days

This blog is mine although it is free care of Google.

Even though I have Lewy Body Dementia, it was a lot of hard work at first as I had no help or support.

It is owned by Goggle and I have no control over any photographs which do not download when viewing. I suppose most of the software I downloaded at the start was and still is Google produced, so perhaps I can download it through this software, but it may not be visible to others

Although I have this illness I am not in control of my brain and therefore thee are times when I forget to do things like spell checks, and I do apologise for that, but I do checks when I remember.

I try to do my best when I write things to make them understandable and easy to read, but this also depends on my brain which changes a lot on a daily basis, so please try to understand there are no deliberate mistakes.

There are also many dementia websites for information, along…

Dementia and co-morbidity problems

Like everyone else with any form of dementia we tend to struggle on learning to live with this illness, but never really take on board the extra problems that come with the illness.

Memory causes so many problems in this illness, yet when we look at the other problems life becomes a bit of a nightmare.

Co morbidity in dementia is not something to be taken lightly or ignored, let until, I was at a meeting the other day, I had not really put everything together. I was looking at certain problems on their own, and only when I had to.

But like many other people my eyes are playing up and changing rapidly sometimes, so its very difficult to read, or see words or item for what they are.

I guess its a form of word blindness, I see the word but these days don't always understand what it means, or is trying to say, and that is very hard to cope with, and can be distressing.

I know that it does not happen all of the time, but when it does it causes a lot of upset, trying to think how to s…

London Underground and dementia

Yes I have Lewy Body dementia and I have struggled for some time with London Underground, but now this new section of tunnel from Kings Cross station to the underground is something that I cannot cope with at all.

Its certainly not dementia friendly and I doubt if anyone with any neurological illness can cope with it.

It may seem space age, but that's about it

Its not straight and the walls are curved, so its difficult if not possible to stay upright, as you cannot touch the wall without reaching out and losing your balance.

To add to this it is full of idiots who don't know their left from their right, so while trying to walk along the wall, you are pushed out of the way, by these clowns going in the wrong direction, or those who left too late and are in a hurry.

Why do these engineers build monstrosities like this without consulting those who have to use it on a daily basis, or those with terminal illness.  Is this the work of the Mayor Boris or Network rail engineers who j…

Flooding in Britain

As someone who has been flooded at home in the last few years, I am staggered by the lack of response from the British Government, who seem hell bent on passing the blame onto the Environment Agency.

This is a very distressing time for all who are effected by these floods, and to be honest these elected politicians are helping no one, and neither are the press, who seem to be having a wonderful time getting in everyone's way.

Whether we like it or not the government has drastically cut the budgets of all government departments over the years, including the environment agency, who according to treasury guidelines can only spend so much money per house hold?, something they are trying now to say is wrong, yet listening to the media these days the money is endless

This is politics at its worst, and lies at best because no one seems to want to  be responsible in Parliament, and the minister responsible is now on sick leave, and the country is left with MP Mr Pickles who seems hell be…

King Lear and Lewy Body Dementia

A very interesting article to read.
King Lear could have been suffering from Lewy Body dementia, the actor Simon Russell Beale has suggested, as he discloses the medical research he undertook before taking on the role. Russell Beale, who is currently playing Lear in the Sam Mendes-directed production at the National Theatre, said he had studied the form of dementia to help him understand the character. Speaking at a platform event at the theatre this week (Weds), he said the research had helped inform his performance of a Lear suffering hallucinations, fear, anger and a shaking hand. “In this one, I thought I bet Shakespeare, being the acute observer of human nature that he is, would have studied old men,” he said. “I thought: I’m going to do a bit of research.” He added it was the first time he had undertaken such specific medical research for a role, as he called on qualified family members to assist him. His nephew, who was undertaking his geriatric medical training at St Bartholome…


A poem published by a dear friend who has MS.

I  read it and thought it matched my thoughts about life in dementia, so nice but realistic and too the point.

My heart is in my boots, I can see no reason for looking forward And plenty for looking back On how things used to be, And I don’t even have to wear My rose-tinted spectacles. Time may have smoothed the edges Of my recollection But the past carries with it an inherent security; It has stability and no unknowns, And whereas looking into the future In former times would have meant Excitement and promise and adventure, Now it is a journey Fraught with uncertainty and doubt. I am no longer myself, Merely the product of my life’s circumstances, I don’t belong to the present any more Than I belong to the past. Somewhere between the then and now I have lost the person I really am. The future has claimed me And draws me relentlessly onwards Towards the person I shall become But I am afraid that person Might not be me.
Anne Wilson

Antibiotics and Dementia

I am wondering if antibiotics cause extra problems to those who have dementia, because since I started my last dose of this drug, I have been living in a dark place, where I have been very agitated and annoyed at times, taking it out on anyone who got too close, including my poor wife.

I feel as if my head is a a big vice, and find it hard to concentrate let alone think straight.

I have lost count of the amount of these tablets I have had since early December for chest infections which will not clear, and now I have decided that I cannot take anymore, and will just have to take the consequences if this does not clear by tomorrow lunch time, when this medication ends.

I know that they are there for a very good reason, but I now feel enough is enough, and I will try to carry on without them.

This has been a difficult decision to make, but I do think its the only one I can think of, as I want my life back again, and if the infection comes back I will have to face the consequences later.

Dementia and Eyesight problems

Follow up of a previous article

After all of the tests were done on my eyes I confess that I am have no more idea about this subject that I had originally.

I noticed some time ago, that my eyesight was giving me problems when trying to read and concentrate on things like my blog, but when I got my eyes tested I was told there is nothing wrong.

I know that my brain fluctuates quite regularly during the day, through my Lewy Body Dementia, and I go from being active to not being able to work things out, so I am now wondering whether this has some effect on my eyesight as well as this also fluctuates, and after a while it becomes annoying. I sometimes get blurred vision and other times I see double. I had double vision problems many years ago and it was corrected, but that was before the Lewy Body dementia started.

I also have word blindness, so I don't always understand words these days, and on other days find it very difficult to spell or think how to spell words, which is very distress…

Dementia and photography

After a very good sleep last night, in fact my first in over a month, I got up and decided to get my head into gear, and for once a topic came to my head, so here we go

Photography is a wonderful hobby for everyone these days,  but its also a lovely hobby for people with memory problems and dementia.

I  have many friends living with various forms of dementia, and quite a lot of them love this hobby because photography allows them to express themselves in a different way, and its very interesting looking at some of their photos as they all seem to see things in different ways.

A few years ago, I was close to giving up the hobby because, I was seeing too many professional photographs, and I knew that they left me for dead.

But a good friend in Scotland James McKillop, told me to carry on and ignore the rest.

He went on to tell me, that we see things differently to other people, and therefore our pictures are sometimes unique.

He then went on to have his own exhibition in Scotland, and I…


Looking at the news these days I feel very upset for those who are under threat of flooding in the South West of England.

Having suffered from flooding two years ago, we suffered a lot of upset and distress, and we had to move out of our home for 6 months while it was rebuilt. A lot of this has disappeared from memory now, which is one of the positive things, if I can say that for memory problems.

We had around 30 inches of water in the house for around 6 hours, after which we were left with a sea of mud and sludge.

When I look at television and see the homes in the South West, I do wonder how they cope with this as its gone on since Christmas, and there seems to be no end in sight.

How many people in this are have problems like dementia, and are struggling to cope. It must be bad enough when you are fit and active, but if you have an illness it will be devastating.

I really do wonder what is going on. I do understand that a lot of this could be to do with global warming, and some of…

Back again

Its been a very long haul with constant chest problems since early December, and I am no where near to getting clear of them yet.

I am now back on another long dose of antibiotics, in the hope that this will clear the problem up once and for all, but its left me feeling very tired and low, because of the trouble breathing and the constant coughing up of mucus by the bucket load.

When I wake up each morning, I feel as if I have a bag of cement on my chest, and it takes time to clear this so that I can breath again.

Over the last few weeks I confess that I lost total interest in all of my hobbies including my blog, and this in turn has hit my ability to think and work things out.

I have been warned  that I will be a hospital inpatient if this does not clear, and I confess to being terrified of that now, I simply don't want to go there. I now have a fear of hospitals and simply don't wish to go there, because those places and dementia don't go together anymore.

It could well…