Showing posts from March, 2013

The Unknown

We all go through life worrying about what may be happening or what may happen in the future, and that is normal, but those who are ill struggle with fears of a different nature and that is the fear of the unknown in our futures.
Many struggle with family relationships, or the dread of future examinations, or perhaps hospital appointments, they are all natural and yet all totally different, as they are approached in different ways.
As someone with an illness which the doctors assume is dementia related or to give it its full term Lewy Body Dementia, I find thinking about the future fills me with total dread and fear. In my case it’s the thought that I may loose control over my dignity. I also dread the fact that I may well forget my family members.
Since I was diagnosed at an early stage, it gave me time to sort myself out, so that there is not too much left for my wife and family to do when things go pear shaped.
It also gave me time to look back at what I had achieved, and sort out an…

missing messages

I would just like to say a big thank you for all your messages sent recently and apologise as most of them had disappeared into a spam box which is only visible on certain pages of the blog.

I only found this section yesterday and was shocked to see so much in it.

As there were over 45 messages there is no way I can answer everyone so please bear with me.

I have been struggling with my Lewy Body Dementia anyway, and then when this Meniere's type illness started it through my completely, however I am feeling much better today and looking forward to a few days holiday next week in Inverness.

I will try to answer some comments all being well, when I come back again

Many thanks


Dementia and Art

Claire’s putting people in the picture on dementia
8:47am Friday 15th March 2013 in News

AN art project aimed at bringing greater understanding of dementia has been launched at the Royal Bolton Hospital.

Award-winning artist Claire Tindale spent two days a week for three months at the hospital, funded by the Arts Council, to create a series of thought-provoking photographs.
She talked to staff, patients and relatives on three complex care wards to help understand the journey patients with dementia often make from home to residential care.

Her work, which is displayed on the hospital’s first floor corridor between C and B Block, has now been unveiled.

The photographs show tiny models including a medical records trolley, a commode and a walking frame, which are each cradled in a pair of hands.

Three of the models are on show across the wards involved in the project.

Ms Tindale said: "The images are symbolic of the vulnerability of people with dementia and the responsibility of t…

Blog interest

When I do these blogs I often wonder if the people reading them have dementia or if its people like researchers or carers who are looking.
Its truly amazing how many people in vastly different countries read this, and I often think it would be nice to hear from those reading it to see why they are here and whether they find it interesting and helpful.                                                                                                                                                                                 If anyone has anything they would like to contribute to this blog they are more than welcome and it would be good to hear what happens in many other countries, or in deed mention any problems which other people with dementia have.                                                                                                         Please feel free to contact me.

Changes in health

I found out on Monday that it is quite possible that I have Meniere's Disease, as well as Lewy Body Dementia after a battery of tests at our Doctors Surgery by an ENT Specialist and his team.

This was quite a shock, but it explains some of the problems that we had put down to the Lewy Body dementia.

I had been seen by three different doctors who all had different ideas as to the cause of my problems and then eventually another doctor who was on duty, said that I needed to see the specialist as there was something wrong.

My wife had asked him if the problems were linked to the Dementia and he said definitely not.

I had been struggling with falls, and the feeling of walking on an enormous mattress, when I was walking down the street, along with hearing difficulties and tinnitus, and everything was starting to get me down as I could not sleep properly due to the noise in my ears.

After spending last week end in bed so that I did not fall over, I was a little unsure as to what the s…

Ripon dementia charity celebrates first year in style

Well done to this group as they are showing us what is important in the dementia field, and proving that there is more to this illness than being an information outlet like many front line charities in Dementia

Ripon dementia charity celebrates first year in style
Jacqui Springay, Richard Clarke, Jill Clarke and Barry Springay. (1303012AM7)

Published on Sunday 10 March 2013 08:46 Ripon-based charity Dementia Forward has celebrated its first anniversary in style with a black-tie ball at Rudding Park Hotel in Harrogate.

Sir Graham Hall was among 140 guests at the event, held to celebrate the charity’s first year of supporting people living with dementia in Ripon and Harrogate. Dementia Forward’s chief executive Jill Quinn said: “The ball was a great success and I’d like to thank everyone who attended the event and donated so generously.”
Guests at the anniversary ball were treated to a night of food and entertainment, with live music and a four-course dinner.
Local young ent…

3p pill cuts dementia risk by half

What wonderful news, when you read things like this. It gives hope to many in year to come A BLOOD pressure pill which is taken by tens of thousands of patients could be the key to beating Alzheimer’s disease. By: Jo Willey Published: Wed, March 6, 2013 3Comments Progression of dementia can be slowed if drugs are taken immediately British scientists believe the 3p a day tablet could slow progression of the disease and even combat devastating memory loss. Experts at the University of Bristol hope the drug losartan will be so effective that high blood pressure patients could routinely be given it to protect long-term against Alzheimer’s. The university’s Dr Pat Kehoe is launching a ground-breaking four-year £2million UK trial. He said: “Without wishing to get ahead of ourselves, the beauty of this drug, if it is found to work as we expect, is that it is already available and is cheap.” Previous research has found that people on losartan for high blood pressure also appeared to be signifi…

Healthcare Innovation Expo

Department of Health to build ‘Dementia Village’ at Healthcare Innovation Expo 4 March, 2013 The Department of Health (DH) is hosting a major dementia event at the Healthcare Innovation Expo at ExCeL London on 13 and 14 of March 2013. A dedicated area of the exhibition hall will be devoted to a ‘Dementia Village’ to showcase good practice and innovation in dementia care, dementia friendly communities and research.
The village will contain a main stage for speakers, a village green and bandstand with leisure and entertainment activities to get involved in, and a house demonstrating ways that we can support people with dementia and their carers to live well.
There will be a school hosting workshops and sessions enabling people to become Dementia Friends. A high street will house a number of organisations taking innovative approaches to helping people living with dementia, and a cinema will show dementia-related films. Trevor’s Garden will provide a quiet space for delegates …

Good nights sleep

I had a good nights sleep last night after a brute of a night the night before when I had three bad nightmares one after the other, and felt totally drained all day.

I have not had a night like this for some time, although I have had the occasional bad night, but nothing compared to Friday night when I just wanted it all to end once and for all.

It is hard to explain these nights and I often wonder how Trainee Nurses are able to take on board what its like to live like this let alone qualified staff.

Sadly on Friday my wife was sleeping like a log and did not hear me when I needed help as she was so tired, but she was desperately sorry the next morning, when I told her all about it.

I try to get away from bed when I wake up from these as, I don't want it to start all over again as it does some times, and I don't want to upset me wife as she finds it very hard to understand whet is going on, especially when they get violent.

There must be some reason for these things to happe…