Showing posts from September, 2015

Dementia and Vision Problems

Dementia and Vision Problems This factsheet considers some specific visuoperceptual difficulties that people with dementia can have, and possible ways of helping them. Understanding potential perceptual problems and intervening with appropriate help, support and reassurance can greatly assist people with dementia to feel safe in their changing perceived reality. People with dementia can experience a number of visuoperceptual difficulties due to normal ageing, eye conditions, and sometimes from additional damage to the visual system caused by specific types of dementia. Vision difficulties can result in a variety of ‘visual mistakes’ (including illusions, misperceptions, misidentifications and sometimes even hallucinations). They can cause a person with dementia to misinterpret their environment and what is in it. The consequences of such difficulties can be more severe for people with dementia than for people without, since they may not know (or remember) that they are making ‘visual mis…

Consultation went better than expected

On Friday we had a second opinion in Newcastle, and even though I left feeling drained and uncertain, I knew that someone was finally looking at my case  from a new prospective, and had decided to try to get it sorted out.

I left feeling as if i had been put through the wringer, because so many questions had been asked, and yet I hardly remembered anything about the appointment.
Then when we got home my wife sat me down, and tried to explain, what had happened, what had been said, and what had been arranged.
I then fell asleep for  over an hour, and then started asking her the questions again.
I confess that I still do not remember most of what was said, but I remember enough to feel happier, than I have been for the last year.  I think I am driving my wife mad because I am still trying to get my head around this hospital visit.
 But I understand that I am being sent for a new scan, and some eye tests in a nuerological department, because of my vision problems
I also understand that I…

Time for the second opinion

On Friday morning  I have to get up very early, because I have to get a bus to travel 8 miles to Newcastle upon Tyne for my second opinion.
This is to see whether I still have Lewy a body Dementia, or whether,  it's Mild Cognitive Impairment as my new consultant has said.

I confess that I cannot understand this, as two prior consultants diagnosed me with Lewy Body Dementia, so I do not understand how things can change. 
Can these two people really be wrong.
This has been a difficult year with this dragging on, but as I was told the other day, there is no guarantee that I will get the answers on Friday.
However after the second opinion has been done,  I have to return home to travel to another hospital,  to the balance clinic, where I will see the Parkinson consultant.
So I would imagine I will be very tired by then, since this is being done in my home town 8 miles from Newcastle.
My wife has told me that the Parkinson consultant, has said that he will take things further if I do …

Not enough Doctors working on Alzheimer's Research says the Alzheimer's Society

There are "serious gaps" in dementia research, which is slowing down the development of new treatments, a charity has said. Few career opportunities and a lack of funding is leading to a shortage of doctors working in the field, the Alzheimer's Society warned. Its report found that 70% of dementia PhD students leave the research area withi
n four years, while five times more people are doing a PhD in cancer than dementia. Despite the fact that most dementia patients rely heavily on social care, fewer than 2% of the most prolific UK dementia researchers specialise in social care and social work. The Alzheimer's Society commissioned the study from the not-for-profit research firm Rand Europe. It found that the lack of a secure career path for researchers, due to scarce funding, was putting people off. It also found too few mid-level positions for post-doctoral researchers to help them move to their first independent research post. Health professionals already working i…

Sight perception and hallucinations in Dementia

Sight, perception and hallucinations in Dementia
People withdementiamay experience problems with their sight which cause them to misinterpret the world around them. In some cases, people with dementia can experience hallucinations. This factsheet considers some specific difficulties that people with dementia can have, and suggests ways to support them. Understanding potential problems and giving appropriate help, support and reassurance can greatly assist people living with dementia to feel safe, at a time when the way they perceive reality may be changing. Vision and perception Seeing is a complicated process that involves many different stages. Information is transmitted from your eyes to your brain where it is then interpreted, alongside information from your other senses, thoughts and memories. You then become aware of what you have seen (it is 'perceived'). Problems that involve both vision and perception can be referred to as 'visuoperceptual difficulties'. As th…