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Showing posts from August, 2018

Medical Bloopers

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I read this article when I was at the last Balance clinic in Chester le Streeet General Hospital Durham. It was in a newsletter written by the North Durham Parkinson's Society.
Yes I know that this is a serious topic  but, I keep looking at this and it keeps me laughing,




Sign of the Times

Recently I took the decision to step back, and retire from doing presentations and talks, because of ongoing medical  problems.

This was not taken lightly, because as well as talking about Lewy Body Dementia etc, I got quite a lot out of it, and met many new friends on the way. 

But over the last few months, I knew that things were changing and that included my health, so after  talking to my wife, it was decided that I should retire, and try to take things easy, while I try to get my back, hip and gait sorted out.

The Orthopedic consultant said that I was walking with a very odd gait, and wanted to work out what is causing it, as it could be related to either my brain or spine.

My walking has got a lot worse, and find it difficult to sit properly, or stand upright  for any length of time, so I guess I realised it was time to change things, before I caused an accident

My daughter is a biologist, so she is often involved in any decisions we make like this, because she understands thin…

Meaning of Hope

When I was undergoing my first diagnosis in Oxford, and was still working, I never let my religious beliefs go.
I suppose I was hoping that my religion would keep me going, and would save me from whatever was coming.


At this time most, clergy prayed for those who were sick, or dying, and it was generally accepted, because these people were usually seriously ill, either at home in bed or in hospital. 
However, I remember reading notes in my Office diary the other day, that I was at an Evening Service in Oxford and was staggered to hear the priest praying for me.
My wife said that I looked at her in disbelief, and perhaps shock, wondering why I was being prayed for, when I was in church.
I now understand that it is quite common, to pray for everyone who is ill these days, but I confess this did not help me at the time, and left me feeling very confused 

Originally, I had started going to this evening service because it was very quiet compared to the normal Sunday service, and easier to cope…

Raby Castle

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Recently my wife Daughter and I went for a walk round Raby Castle in County Durham, a favorite place for may in this area, as its a stunning castle, with vast grounds gardens, Deer Herds and Long Horned Cattle roaming around the meadows.


The castle is set within 200 acres of parkland in the heart of the beautiful Durham Dales

We always pass this castle on our way to our static caravan, and in some ways it always feels like home, because back in the 1960s I was there with the Scouts, and on one occasion we stayed somewhere within the castle during one winter, but to be honest I really don't remember where we were no, as so much time has passed

Raby was built by the mighty Nevills in the 14th century and is one of the finest preserved medieval castles

Since 1626 it been home to the current owner, Lord Barnard. The family are proud of their heritage and are passionate about sharing the families, history and collections with visitors


























                                  A bedroom believ…

Isle of Skye

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Early this year we had a wonderful holiday, with a church group, which went up to the Isle of Skye staying over at the White Heather Hotel in Kyleakin.  The Hotel was owned by a lovely couple, Gillian and Craig. who are very pleasant, and go out of their way to make sure that everyone has a wonderful holiday. We have been there on a few trips, and I can honestly say that we have enjoyed the tour each time we go, because everyone is so very friendly, even though I no longer attend church these days, but everyone makes me feel part of the group, and try to help me whenever they can   
 Some of the rooms look out over the harbour, and I confess that I am totally struck by Scotland, and this area , on the West Coast

 The harbour with the ruins of Caisteal Maol, Kyleakins own castle, which was built in the 1400s, Not much of it is left these days

                                                            Cawdor Castle and Gardens


                                                          …

Dementia and treating us with dignity and respect

Dementia and treating us with the dignity and respect ,that other people take for granted, and expect it from everyone else

Many people think that because they know or have looked someone with dementia, that they understand everything thing about it and know all about its problems.
But this is far from the truth and there are well over 120 variations of this illness, and in each case, the people with the the illness have different symptoms and struggle in different ways to others.
This causes confusion to many people, but as we now know there is nothing straight forward about this illness.
Treat us with the dignity and respect that you would expect from others
By educating and training people to understand the problems people with dementia struggle with on a daily basis, we will then start to see people with dementia being treated with the care and dignity, that you would want from others.
Please don’t patronize us by asking a question and then trying to answer it. Give us the chance t…

Problems with word press blog

The other day I was notified the my Word press blog would not be allowed any further access to Facebook.

I can only assume that Facebook has done this in its crackdown on fake news etc.

But I am not going to take this any further, as I simply don't understand what is going on, and to be honest about this sort of thing, if you try to contact people to complain they never take any notice

I found this out years ago when I had a bad day and managed to delete my Blog on Google.

I tried to explain to Google what had happened, and explained my circumstances, about memory and dementia, but they refused to take any notice. They simply asked for a credit card number, even though I did not like them or use them

Luckily for me most of the blog pages had been created and saved on Word, so I could start again


I have had to go back to my google blog, and hope that this does not get blocked

I simply don't understand why Facebook has done this while Twitter has no objections.

New Help Line for People living with Lewy Body Dementia

Charity partnership on nurse-led helpline for Lewy body dementia 23 July, 2018
By Steve FordEditor · ·Comment Full screen Two charities are today launching a new collaboration to provide a helpline for those affected by Lewy body dementia, which will be run by specialist nurses. The Lewy Body Society and Dementia UK have set up a new partnership to offer expert advice and information through the latter’s existing Admiral Nurse Dementia Helpline. “It is essential that people living with Lewy body dementia and their carers have access to expert advice and information” Jacqueline Cannon The helpline, which is run by Dementia UK for anyone with a question or concern about dementia, is staffed seven days a week by specialist dementia nurses and is free to call. Lewy body dementia is the second most common form of age-related neurodegenerative dementia. It is thought that around 130,000 people in the UK are living with it. From today, when anyone affected by Lewy body dementia who calls the Lewy Body S…