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Showing posts from April, 2017

Good day at Northumbria University

I had another extremely good day at Northumbria University talking to Graduate nurses, although it got off to a sticky start, due to the fact that i was struggling to  see my notes at times. 
So this afternoon I reprinted them in larger lettering 

I spent my time here  talking about living well with Lewy Body Dementia

This is a University where they are aiming to become one of, if not the best Dementia Friendly Nurse Training establishments in the UK.

They have very high standards of dementia training, and it's this that makes me very proud of being involved with them.

I  have been there to speak to Nurses on many occasions, and sometimes this has been done in the nurses own free time which to my proves a big point, and that is they really do want to learn more about the illness first hand.

By doing this I am hoping that all future Nurses, learn how to treat people with dementia, with the care, respect and dignity that they themselves would expect from others.

I know that it is tiring d…

Talking to Graduate Nurses again

As an Ambassador for the Lewy Body Dementia Society, I will be going back next week to Northumbria University to talk to Graduate Nurses.  It's been a while since I did this due to recurring chest infections and problems with diagnosis, but now that things are sorted out again, it will be good to start again, however I am not sure how long it will last.I realised that last time I was giving a talk, that I was struggling to breathe so it's going to be a case of waiting and see.The reason for the talks, is to get these graduate nurses to understand that people with dementia are normal people, it's just our brains don't always work the way they used to do.Yes we have our own individual problems, and sometimes get agitated when we are unsure of what is happening,  or when we are out of our comfort zone.But if we are treated with respect,  we usually  get along well.I always say that everyone should treat others with the same respect, that they would expect from others arou…

Looking back part 2

When we moved from the mining village it was a shock to the system, because we moved into a new council estateYes we had an inside toilet, a bath and hot water straight running from  the tap,  a big garden and we were near to the town centre, but the people seemed to be different. I guess in a small mining village, every one knew everyone else, but in this new estate it was all so very different. People started having things like cars, or motorbikes and side cars. We had a playing field for playing games, but on a dark night it was more fun playing football and cricket in the back street, using a dustbin as stumps etc. If the ball hit the dust bin, there was no denying that you were not out, because everyone heard the bang However many of the locals used to object to the noise, and things would get out of hand if a ball  went into someone's garden, then we had to ask permission to go and get it backYou simply just did not walk in and pick it up without asking.But one of the novelt…

Looking back to early days Part 1

After being at Beamish Museum a lot of memories started to come back, and the grandchildren thought some of them were strange and others were odd, or funny.I was born in a small coal mining village in county Durham, a village that was surrounded by moorlands or fells as we called them..Within the village there was one large deep pit coal mine, and three drift mines, which were sunk into the hill sides. The houses were basic, because they were owned by the mining company, but they consisted of two rooms down stairs, and two upstairs.There was only one cold water tap, and all hot water was heated up on the large coal range in the main kitchen / living room area, downstairs.  The front room was for Sundays,  or for guests otherwise, us children were kept out of it, apart from going through it to go upstairs to bed. There was no bath inside, we just had a tin bath which was hung on the wall outside the house when not in use.  When needed, it was brought in and the water was heated on the …

Lovely Day at Beamish Museum

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After a rubbish start today, I looked at my blog and accidentally deleted this post, and had to redo it all over again
Last week my Son Mark, his Wife Tracy and their children Jacob and Holly, met up with my wife and I, along with our daughter Claire and family from Farnborough who were here on holiday It was lovely to see them all together, as its not often that Claire's Children meet up with Marks due to the distance However Lucy, Emily and Matthew had a lovely time, because they love going up to Beamish 

I can remember many people having motorcycles and sidecars in my early days, because cars were not so popular, as in many cases they were very expensive



         These early cars look lovely, but I would imagine they are not so nice in foul weather

                  Here we watched a Welsh Saw Mill in action driven by a traction engine


                              The Old Penny farthing bikes of days gone by
                                                      First World …

Banks and dementia

Over the last few years a lot of work has been done with Lloyds Banks making them dementia friendly, but now things are changingMany banks like Lloyds are cutting the number of branches they own, as well as cutting  staff numbers down Although I am lucky to have very supportive staff in our branch at home,  it's all changing If I go into the local bank, I am asked straight away if they can help in any way, because I sometimes struggle at times We did a lot of dementia training in the branches in our area, and thought many of the staff were supportive and went out of their way to help. But it seems that now, they are working flat out and don't have the chance to help as much as they didMany of the old members of staff, still come up to me when I am on my own, and ask if they can help. They also ask where my wife is etc.There are not the numbers of staff around anymore these days, and some of the staff have changed, so they don't know about me, and if I am honest I don't…

Hosptials and Dementia

Dementia and Hospitals This was written a few years ago but it’s still very relevant today I do feel that hospitals can be very frightening for most people, but when Dementia is added it becomes a nightmare for those with the illness and their carers. I have not had any experience of dementia in General Hospitals, but in 2001 when I was taken in to hospital with Viral Pneumonia, and I experienced something that was enough to put me off going near a general hospital ever again. This all started when I was admitted at tea time and was given an unmade bed. Around an hour later I was given a drip, and was then told by a consultant that I would be having an x-ray. At around 11pm, and still without a made up bed, I was taken for an x-ray, after which I was told that I could go to bed. However when I returned to the ward there were no staff present, so I had to attempt to make the bed on my own, with the drip in on arm. To add insult to injury, the next morning, the young staff nurse complaine…

Dementia Cafe

This weekend we went to a Dementia Cafe in Barnard Castle and really enjoyed myself.
My wife had suggested that we go, as we were staying at our Holiday Static Caravan in Barnard Castle, and the memory Cafe was around a mile away.
I have been to many of these dementia Cafes, but always left feeling it was a waste of time, but this one was totally different.
I guess that it was different for a few reasons, but one reason was that everyone there  was so friendly, and ignored the fact that we were not really from the town. 
Most people we see around the town speak, and that's something I find unusual, these days. But everyone we see going into, and out of the town centre treat us like locals, and either wave or speak as we pass.
This is what I call a very friendly town, and certainly a Dementia friendly town.
The town where  we live these days, has changed from the town I grew up in, and apart from neighbours, no one speaks.
But the interesting thing about Barnard Castle, is the …

Emphysema and pollution

When I was diagnosed with Bronchiectasis I was confused about the causes, until I realised that it was caused by childhood illnesses like Whooping cough, measels, Mumps, etcHowever the next diagnosis of Emphysema left me standing, wondering where I was, and what was going on, as well as wondering what caused it all Yes I had worked in industry, but in the end the illness seemed to creep up very fast.However it seems, that because I have Bilateral Bronchiectasis brought on  through childhood illness like Whooping cough etc,  as well as a Chronic Heamophilis Influenza bug inside my lungs, i was open to everything that was comng my way, while working in industry. This is all confusing and hard to understand,  but when you have memory problems it causes havoc, because remembering to take all of the medication at the right time is causing total havoc While I did smoke earlier in life , I did not smoke a lot, and stopped after a doctor told me that I would not live to see my children grow u…

Dementia Cafe

I went to a Dementia Cafe in Barnard Castle and really enjoyed myself.My wife had suggested that we go, as we were staying at our Holiday Static Caravan in Barnard Castle, and the memory Cafe was around a mile away.I have been to many of these dementia Cafes, but always left feeling it was a waste of time, but this one was totally different. I guess that it was different for a few reasons, but one reason was that everyone there  was so friendly, and ignored the fact that we were not really from the town.  Most people we see around the town speak, and that's something I find unusual, these days. But everyone we see going into, and out of the town centre treat us like locals, and either wave or speak as we pass.This is what I call a very friendly town, and certainly a Dementia friendly town.The town where  we live these days, has changed from the town I grew up in, and these days apart from neighbours very few people speak. But the interesting thing about Barnard Castle, is the fact…