Showing posts from January, 2013

New drug hope for common form of dementia: review

A new drug made from pigs' brain cells 'significantly' improves symptoms of a form of dementia that affects more than 100,000 people, a respected review of research has found. The drug Cerebrolysin is not currently licensed in the UK and is made from proteins found in pigs brainsPhoto: ALAMY
By , Medical Editor 7:00AM GMT 31 Jan 2013 1 Comment Patients with vascular dementia, the second most common form of the disease, showed significant improvements in their thinking and memory after being given Cerebrolysin, a review of research trials has found. It would be the first treatment specifically for vascular dementia that is caused by narrowing and hardening of the blood vessels in the brain. Around 136,000 people have this form of dementia which is second only to Alzheimer's. Symptoms are similar and include particular difficulty with thinking quicmly, concentrating and communicating and can be accompanied by fits and severe confusion. The dr…

Different problems in dementia

I struggle with things like writing this blog, as I don't always remember what I had set out to write, and that causes a lot of stress.

This then means that it takes a while to write it, or I have to keep saving it and coming back in the hope that I remember the subject.

It also causes problems because using the wrong words throws a different slant on what I was trying to get across in the first place. I say that because finding the correct word is not as easy as it used to be, when I was working.

I also have to use spell check quite a lot, which is good on the days when my spelling is good or not so bad, on other days, there is no way spell check stands a chance, as I can not always work out just how a word is spelt in my brain.

I sometimes use voice activated software to write these things out, but if my voice is quieter or weaker than normal, it does not pick up what I am saying or just writes what it thinks I have said.

Similar things happen at meetings

I confess that when I …

Two bad nights in a row

This has been a very bad weekend as far as sleep is concerned, because of my very graphic nightmares and bad dreams.

I have had two bad nights in a row, and am feeling very tired. When this happens I get to the stage where I really don't want to go to bed on a night, as these things scare me to death.(The terrors of the night I call them). As they can be described in great detail the next day, unlike normal dreams which simply disappear when we wake up
Yet if I have a 20 min nap in my chair after lunch, I can go dead to the world and never hear anything including the telephone. After this I feel more refreshed that I do after a night in bed

I am on medication for this, but as I found out a few months ago, I can not have these tablets increased as I simply don't wake up, and this is very distressing to me.

I often wonder how many people have heart attacks during the night when they have these nasty dreams and nightmares because they simply can not wake up from them

Study links dementia to sleep loss

Study links dementia to sleep loss28 January, 2013 | By The Press Association A link between sleep deprivation and dementia in older people has been found by a new study. Subscribe to Nursing Times and get unlimited FREE access to all Nursing Times Learning units Learning and Studying EfficientlyNeuropathic PainPneumonia Psychiatric Crisis Response Home Treatment Teams Nursing Times Learning The behaviour of research participants was found to vary according to how much sleep they had received.
In older volunteers, a shortage of good quality, or slow-wave sleep, was found to be linked to future memory problems.
This was subsequently linked to disappearance of neurons in the brain’s medial prefrontal cortex (mPFC) area, which often occurs with age.
The study, which has been featured in the journal Nature Neuroscience, asked participants to memorise a list of words and recall them after having slept through the night.
Dr Matthew Walker, from the University of California at Berkeley, US, …

The weather is rubbish here

The weather is horrible outside, its started to snow again and the forecasters say its minus 6, so its not a day to go very far.

The heating was off when I got downstairs, so I had to try to start it to warm the house up, but in the end I succeeded and then had some hot breakfast to get me going.

Where has the sun gone when you need it the most.

Well done to the people of Bath

Public meeting to make Bath dementia-friendly Friday, January 25, 2013 Chron_News A public meeting to challenge Bath to do more to help dementia sufferers and their carers is to be held next month.
The event on February 21 will look at ways of training people from bus drivers to bank clerks to respond to the needs of people with dementia.
Meeting organisers at not-for-profit training group See Change in Dementia (corr) have posed the question: Can Bath become a dementia-friendly community?
The group says all are welcome to the meeting at 7.30pm at St Michael’s Church in Broad Street, which is being arranged at a time when more than 2,500 people in Bath have dementia.
See Change in Dementia director Anne Challenor-Wood said: “The fear and stigma associated with dementia prevents many people from seeking the support which they need. As a community we need to tackle our own fears and find ways of supporting people with dementia in a positive way. “Whether we are family, friends, ne…

Better day

Its been a better day today as the snow and ice are starting to melt, which is good. I will be pleased to see the back of it all as it makes life very hard trying to walk and concentrate at the same time.

I don't think this weather goes well with any form of brain illness.

Snowdrops can fight dementia and lavender may treat hair loss:

Snowdrops can fight dementia and lavender may treat hair loss: How medicine's getting a dose of flower power By Roger Dobson
PUBLISHED:01:32, 22 January 2013| UPDATED:01:32, 22 January 2013

Alzheimer's is associated with a drop in acetylcholine levels Flowers have long been used as traditional remedies, but they’re now being used to treat a conditions from depression and insomnia to cancer. A third of new pharmaceuticals since 2008 originated or were inspired by natural products including flowers, says the Society of Chemical Industry. What makes the chemicals in flowers so potent — even on something as complex as brain functions — is not clear. But it could be due to the sophisticated processes they’ve evolved to deter predators or attract pollinators. Here, we identify the flowers that are finding their way into mainstream medicine . . .

Snowdrop: Used to treat mild to moderate dementia SNOWDROPThis small, white flower blooms in the late winter.
Traditional uses:…

Enjoy life while you can and seize the moment

When I was diagnosed, it felt like the end of the world, and I suppose in some respects it was. Because, it was the end of my working life as an engineer, and the start of a new life living with dementia.
However no one had ever told me that it was possible to live well with dementia and enjoy life in any way possible.
Since my diagnosis I have lost the ability to do many of my hobbies, but I have started doing one or two other things, so in many ways I have not lost anything.
I do think we should strive to do as much as we can while we can, because life is too short.I was brought up to think that anything was possible, and you should never say that you can not do anything, because if you set your mind to it you can achieve many things.
But my consultant told me to stop trying to do things that were slipping out of my grasp, because if you keep trying to do things that are getting more and more difficult through the dementia, you will only get very upset distressed or perhaps depressed an…

Secondhand smoke linked to dementia

Secondhand smoke linked to dementia18 January, 2013 “Passive smoking can dramatically increase the risk of developing severe dementia,” is the Daily Mail’s headline. The newspaper reports that a study has been the first to show a significant link between exposure to secondhand smoke and dementia. This news is based on a large Chinese study that looked at the “mental state” of over-60s and their lifetime exposure to secondhand smoke.
Researchers used a computer program to see whether the participants had problems with memory, thinking and changes in personality that were consistent with “moderate or severe dementia syndromes”. They then looked to see whether there was a link between secondhand smoke exposure and dementia symptoms and found that people reporting any secondhand smoke exposure had a 29% increased risk of a “severe dementia syndrome” compared with those with no exposure to smoke.
The harms of passive smoking (such as increased risk of heart disease) are well-established a…

Strange week

Its been a very strange week,  being back home again, and trying to find things we have not seen since the flood in June.

Its also been difficult to sleep properly during the night as the house is so cold, as its been empty for so long without any heating.

The next door house is still a building site, as they have not even started to rebuild the house as this is possibly making our own home colder, and to make matters worse they don't seem in any hurry to start the building work.

One good thing is that I have now got my computer up and working again so I have reclaimed part of my life and I can do things like my blog which I have missed for so long.

I can also catch up with reading about dementia around the world, and would be interested to hear other peoples stories.

Thank goodness for spell check

Rock Star's Dementia Cured

Rock Star's Dementia Cured: Dick Wagner Is Back In The Music Business Dick Wagner, the rock star’s dementia was a mystery to him, until doctors managed to find a cure for it and get him back in tune with his guitar playing. Dick Wagner is best known as a close cohort of Alice Cooper (he co-wrote most of Cooper’s biggest hits, including ‘Welcome To My Nightmare’) and has also played lead guitar for the likes of Aerosmith and Kiss.
In 2007, however, his career hit the rocks when he suffered a stroke and a heart attack, Yahoo news reveals. “I woke up from a coma after two weeks with a paralyzed left arm,” says Wagner. Although he worked hard at rehabilitation, there was something stopping him making a full recovery. He suffered from a “mental fuzziness” as well as balance issues, which created further problems, when they caused him to fall and injure himself. In 2011, though, he was finally diagnosed with NPH (normal pressure hydrocephalus), a build up of spinal fluid in the brain’s…

Nearly time to return

It seems  long time since i last posted on my blog, but i am hopeful that our telephone  and broadband will be restored again tomorrow all being well.
I have been lost without my blog as its the only thing keeping me going.

attitudes towards dementia need to change

Jeremy Hunt: attitudes towards dementia need to change Health secretary says doctors are refusing to carry out tests because they believe it is pointless Press Association, Tuesday 15 January 2013 01.06 GMT
Jeremy Hunt: 'It’s disgraceful that more than half of all people with dementia are not receiving a diagnosis.' Photograph: Dan Kitwood/Getty Images Doctors are refusing to carry out tests for dementia because they believe it is pointless as there is no effective cure available, health secretary Jeremy Hunt has said.
Hunt said the country should be "ashamed" that so many people were being denied treatment that could stave off the condition for years.
His comments came as the Alzheimer's Society warned dementia sufferers were facing a postcode lottery of diagnosis rates.
It released data suggesting that in some areas of the UK, as few as one in three people suffering from the condition will receive a formal diagnosis, while in other…

Hoping for a better year

This has been a long month due to moving back home again after 6 months living in a small flat since our home was damaged in the floods of last June.
We finally got back home on Wednesday, but our boiler broke down the day before, so it’s not a good start, but we have to try to be positive.
Every one of our neighbours we talk to, is worried about more floods and its times like this that you really understand what people have gone through, when you have lost possessions and had your home damaged by a flood. I think many have been struggling with depression which is very sad. My consultant told me that if I had problems with depression since my diagnosis, this period of my life could have been disastrous.
We are still waiting for British Telecoms to connect our telephone and Internet, next Wednesday, and then I can get back to using the blog again rather than updating my laptop in noisy Pubs where I cannot concentrate
I am hoping that this year will be more positive than the last