Showing posts from February, 2013

A day to remember

I was on the footplate of this magnificent A4 Mallard locomotive this morning and it was like a childhood dream come true. I can remember as a young boy watching this train go past our home thinking I would love to be on board the cab. Yes it was in the museum and did not move, but it was lovely and I felt as if I had achieved something great today. As a person with early onset dementia it was truly a dream come true, even though it was in a museum and not working. It would be lovely to see it running again, but I would never be allowed on the footplate of this wonderful train while its running. 

Below we have trains which used to haul iron ore from Tyne Dock up to Consett Iron works, and we used to watch these steel monsters pulling their loads up the very steep gradient each day when we were not at school This track crossed the LNER main line where the Mallard was running so we had a choice of different trains to watch, and marvel at them wondering if any of us would ever get on the…

Bad night

Last night was grim after two very bad graphic nightmares one after the other and they frightened me to death, and ended up trying to listen to music, as I was frightened to go back to sleep again.

Whether I was over tired in the first place and that caused the problem I don't know, but I can not think of any other reason.

I know I am tense due to the tinnitus noises, but I usually get relaxed when I put some quiet music on.

However I do wonder how many people don't wake up from nights like this and it is put down to heart attack or something similar as its so bad.

I was on medication which was supposed to help but after two weeks I found that I just couldn't wake up from these horrors, and after this happened twice I stopped taking the medication. My consultant said that I could be too sensitive to the medication,

Beamish Museum and Dementia

Beamish 1950s town used to help dementia sufferers
Michelle Ball with a reminiscence box

Published on Tuesday 19 February 2013 11:07 For people with dementia, remembering the past can provide a valuable link to the present. Alison Goulding reports. Photos by Andy Martin.

BEAMISH is famous for celebrating bygone years, but some of its most treasured work concerns people in the here and now.
For years, staff have been working with care homes and helping people with dementia enjoy some cheer and good fun.
Now, ambitious plans to build a new 1950s town at the museum have been revealed which will feed into this work.
A block of Aged Miners’ Homes within the town will provide ‘Homes for Memory’ – a dedicated centre where people living with dementia can visit with their families and friends.
Michelle Ball is outreach and access officer for Beamish and has worked there for four years.
Her work includes sessions with older visitors and specialist workshops for people with dementia…

Not a bad week

I have just spent the last week at home with my family, which was lovely.

It was stressful at times due to the noise from the children, and even though I am having problems with my hearing it still got bad at times.

Its wonderful to see the Grandchildren when they come up North, but it can be a case of over kill as their noise can be hard.

This is of course made much worse by the fact that the builders have only just started to rebuild the house next door, even though its been empty since the flood last June.

Still the weekend is coming and although the builders will be here for months to come, our family are heading back South and home again in the morning.

Next week I have an appointment at the doctors so they can decide what to do about my hearing as its getting worse, and the tinnitus at night is overbearing, so I hope they decide to do something now that its getting worse as its gone on long enough now.

Dementia and photography 2

In a previous topic I talked about hobbies and photography in particular, something I really enjoy on the good days.

I have two hobbies that I really enjoy, one is looking after my tropical fish aquarium something which has given me so much satisfaction, on good and bad days as it is so relaxing, to look at without doing much.
The second is photography, a hobby that I always enjoyed, even before the diagnosis, but now there are problems remembering the settings etc.

The pleasure I get from this hobby is quite something, and yes things can and will go wrong but with digital photography life is sometimes that bit easier, as the bad pictures can be removed rather than expensive processing only to find the photographs failed to come out or are blurred.

I have tried a few things to try to remember the settings, but I always get somewhere and either can not remember them, or can not find the paper with them on. This gets distressing, but I have to fight this as I get so much out of the hob…

Not a good day


I had to go to the doctors today as I felt dizzy when I got up this morning and things got worse after that.

It seems that the original problem found in early October has returned, and they think it is either Vertigo or something called Meniere's, all to do with balance.

Last time I had it, it lasted for around a week and that was awful, so I am hoping its not that bad as I am supposed to be speaking at an event in Lincoln next week


I felt ill yesterday and did not want to do very much, as I was staggering a lot in the afternoon and ended up going to bed to try to sleep in the hope that the drunk feeling would be gone when I got up, but it carried on till I went to bed at night.

I don't know what causes this but on top of my Lewy Body Dementia it has been grim over the last few days.
Today is slightly better so I am hopeful its clearing