Showing posts from May, 2013

Number of NHS staff with dementia training to rise

A very interesting article in one of todays newspapers

The number of NHS staff with dementia training will reach 100,000 by March next year under a shake-up of medical education in England.

Measures to tackle a historic shortage in medics specialising in accident and emergency are also included in the Government's mandate for Health Education England (HEE).

Under the plans, more nurses will have part of their training in the community and the NHS will have enough midwives and maternity staff for all expectant mothers to receive personalised one-to-one care.

Health minister Dan Poulter said: "The staff working in our NHS are our health service's most precious resource, and we must do all we can to ensure that our staff have the right values, training, and skills to deliver the very highest quality of care for patients.

"Today's mandate to Health Education England, backed by a £5 billion budget, will help our many dedicated frontline staff to further improve thei…

Good book

I have just read a brilliant book called" Who will I be when I die", written by Christine Bryden  explaining her diagnosis and how life changed.

This is a wonderful book which  explains the problems we struggle with on a daily basis.
I would recommend this to anyone training in the dementia field.

Christine has Alzheimer's but has very similar problems to me with my Lewy body dementia, and although I have written about my problems in my blog, I could not have written this any better as Christine is brilliant at explaining things like this.

A true ambassador in dementia.

Very noisey

We are travelling by train to our daughters this morning but.i am struggling as the noise level on the train is horrific.

Everyone seems to be trying to speak louder than the rest of the coach and it gets worse when the train speaker system starts.

My hearing is acute due to my lewy body dementia so this is like a journey from hell to me.

I am not blaming other people really, its just life is so fast these days, with my moth eaten brain, and I cannot keep up with the hurly burly and modern  high speed life, with all of its  sounds and sights.

Contact information

I have received hundreds of e-mails over the last two months from people wanting to ask questions  about the Lewy Body Dementia, the blog and many other things.

 As you can imagine this illness makes life hard at times, especially when trying to work things out on the blogs itself, as I don't always see the obvious

But to try to help, tonight I have installed a contact section on the bottom of the page where "hopefully" friends, can send their details and questions and I will try to get an answer back to them.

It may take time to get it all sorted, but I will do my best to answer any questions that come up.

Like many others I try to use this blog from my mobile phone, but sadly not all of the blog settings are visible, so its hit and miss.

I suppose being a free blog, you only get the basics to work with, but on the whole I am not too bothered, as it does the job and too much information to someone with this illness spells disaster.

So I will carry on and try to make t…

Dementia Friendly University

As a person with early onset Lewy Body Dementia I have been very proud and privileged, to have worked with the Staff at Northumbria University, where over the last two years I have occasionally given talks to students who are taking a degree in Nursing.

During this time they have been learning about my life with dementia, its ups and downs.
It has been a privilege to explain the problems I struggle with on a daily basis, in the hope that the Nursing staff of the future are better equipped to help and support others who have dementia, when they need to go into hospital for treatment.
The students have always been good enough to send us personal remarks, after each talk and that does make it feel as if it has all been that bit more worthwhile because, it also proves that they too get something out of the talks.
I can honestly say that the lecturers have been so supportive and kind, especially by giving me enough time to consider the subject for my talks well in advance, so that I can spend…

Living with dementia

about 13 hours agoKen Clasper talking about his dementia on ITV Tyne Tees and Border Credit: ITV Tyne TeesBy 2030 there will be more than 50 thousand people in our region living with dementia.
It's a figure that's going up rapidly but, as we enter National Dementia Week, there's a still a startling lack of awareness about the disease.
Ken Clasper, who has been living with dementia for many years. You can read his blog here.

News Press articles

I had a comment today about my use of a news press article in my blog. Its not something I do a lot of as I would rather write my own when I am up to it these days.

When I  do used  a clip from a newspaper it is to highlight something well worth it, or to highlight a local Alzheimer's project, so that others can see what it is possible to do in their own area.

I never intended to copy anyone else's information for my own gain, as that's not my aim.

I am trying to help everyone who has or is caring for a person with dementia.

If I have upset anyone I apologise but that was not my intent, I trying to raise the profile of this illness.

This is something we all have to work together  in doing as its very important that the illness gets a higher profile and better services

I hope that will end this topic as I am here to help myself and others with the illness, not get into a press argument online.

Dementia Awareness Week urges people to get talking

Published on 18/05/2013 08:30 PEOPLE in South Tyneside are being urged to join the debate on dementia.

The Alzheimer’s Society is encouraging people to get talking about the condition during Dementia Awareness Week, which runs all next week.

The charity is inviting residents of all ages to attend a series of events in the borough to help people with the condition take the first steps towards receiving help.

The South Shields team will be holding a ‘dementia café’ at St Gregory’s Church, at The Nook, on Monday from noon to 2pm. It will be open to the public and will feature a presentation by North-East-based neurological researchers.

People worried about their memory or concerned about loved ones or friends are invited to pop in to the charity’s South Shields office, in the Edinburgh Buildings, in Station Approach, for a private chat with a dementia support worker or memory protection nurse on Thursday from 11am to 2pm.
On Friday, the Alzheimer’s Society team will be manning a stall at…

Hospitals ‘fail dementia patients’

HOSPITALS are ill-equipped to deal with dementia patients when they are admitted with other medical problems, a leading nurse has warned.

Care for dementia sufferers could be transformed if nurses were given the time to care for patients Jeni Bell, the UK’s first hospital-based Admiral nurse – specialising in dementia – said care for sufferers could be transformed if nurses were given the time to look after patients, rather than be restricted to just dealing with their clinical needs. Ms Bell, based at Southampton General Hospital, said: “People with dementia don’t go into hospital because they have dementia, they are there because they are physically unwell but acute hospital staff have been ill-equipped to deal with the added needs that dementia presents.” Dementia UK has been awarded £1.4million from the Health Lottery If patients are confined to bays, they will wander of…

Nice walk in the park

After last weeks disaster of being a rubbish week, I decided to get up early and go for a walk round the local park before the dog walkers and bike riders got out, so that I could enjoy the peace and sit for a while watching and photographing the birds and wildlife.

I enjoy this as its so peaceful and if you sit long enough the birds ignore you and even come up to see what your doing.

Its so relaxing that I could sit there all day. Of cause its not all plane sailing when you have an illness like dementia, as we tend to forget the settings, and we don't have the speed that other people have on their side, so a lot of this is down to good luck.

I do feel that it is a hobby which needs support, but these days there are very few people who have the experience who will gladly spend time helping us with hobbies like this. These photos are not perfect, but I am proud of them and feel as if I have achieved something wonderful

When the sun came out the water colour was beautiful I took t…

'4D theatre' dementia centre opens in Norris Green

Liverpool City Council said people would be able to "immerse themselves in the sights, sounds and smells of the past"
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A Liverpool dementia centre featuring an interactive "4D theatre", thought to be the first of its type, has opened.
The £1.2m council-run Sedgemoor Dementia Support Centre, in Norris Green, will be used by 30 people a day.

Liverpool City Council said people could "immerse themselves in the sights, sounds and smells of the past" through videos and relevant scents.

An estimated 670,000 people in England have dementia, with the figure expected to double in the next 30 years.

The theatre aims to help with cognitive therapy. The centre will also provide assessment and respite facilities.

Hundreds visit Alzheimer's Society Dementia Community Roadshow

10:30am Sunday 12th May 2013 in News By Alexandra Rucki Hundreds visit Alzheimer's Society Dementia Community Roadshow Hundreds of people visited an Alzheimer's disease charity roadshow for advice and support.
The Alzheimer's Society Dementia Community Roadshow stopped at Tesco, in Oldfield Road, Sutton as part of its current tour of London.
Staff and volunteers were joined by MP Paul Burstow when it arrived last week.
People suffering from dementia or their friends and family were encouraged to drop in with no appointment necessary.
More than 100 people were given advice, while 39 people wanted a consultation in special rooms set up.
Figures show 1,586 in Sutton and Merton were diagnosed with dementia last year.
The charity has raised more than £7.5m to help improve the lives of people with dementia and support research.
Mr Burstow said: "It was good to…

Do the Media need to cover stories on dementia, more responsibly

I have spent the last four weeks trying to write this, as I was getting very angry at the way the press publish some stories about dementia. I had major problems using the computer and spelling words correctly, so I hope this works I do feel that the Media need to be more responsible in their reporting of dementia issues, so that they do not reinforce stereotypes and stigma, just to get an eye-catching headline
I do think that the media do have a lot to answer for as far as dementia is concerned, and unless things change they will carry on, causing unnecessary distress to those with the illness
The reason for saying this is:-
We see constant headlines telling us that someone has found a cure or a miracle treatment, but it’s just leaving those with the illness to think that things are going to get better, when in reality it is not likely to happen for years to come.
We see stories of foods which stop the illness, but can that be true.
We see one moment that the Mediterranean diet is good for…

Odd Week

This has been a very odd week which got distressing at times, as the wheels seemed to come off.

On Wednesday things got so bad, that I got agitated and my poor wife took the brunt of everything that went wrong, but it was one of those very bad weeks with this illness.

Everything was in a fog, and could not see an end to it

I kept typing the wrong letters on the keyboard and could not do my blog, and after a few goes I feared that I would be losing control of it. This did hurt as my blog is my life and it means so much to me.

I also struggled with my Linked In UK,  page and ended up closing it down as it seemed to be sending out invitations to so many people one day that it got embarrassing.

Whether I had something and not realised I just don't know.

Lets hope things get better over the next few days

Honarary Doctorate for person with dementia

I have just heard that a dear friend of mine has been awarded an, Honorary Doctorate by Bradford University for his work in raising awareness in dementia.

Trevor Jarvis who is a quiet and reserved man was one of those responsible for getting me involved in campaigning and raising awareness in dementia, and I will always be in his debt for his support, and dedication showing me the ropes.

When I was diagnosed with early onset Lewy Body Dementia he encouraged me to get involved, and I have never looked back since.

It just goes to show that all of your hard work can be recognised.

Well Done Trevor

people with dementia and assistive technology

This week we saw this article in the news press and it caused so much uproar that its unbelievable, as many comments are from elderly and some like myself who have dementia.

Sussex Police have bought 15 GPS tags which they hope will save them money searching for pensioners who wander off or go missing.
Chief Inspector Tanya Jones told the Daily Telegraph: "The GPS will be very cost-effective to the police. It will reduce anxiety for the family and really reduce the police time spent on this issue."
But Dot Gibson, general secretary of the National Pensioners Convention accused the police of "trying to get care on the cheap".
"I think they should withdraw it straight away," she said. "Trying to equate somebody who has committed a criminal act with somebody who is suffering dementia is completely wrong.
"I doubt whether anyone in the Cabinet would want their parents dealt with in this way if they were suffering from dementia.
"It looks at the…

Dementia and Charities

I have often wondered what people get out of being involved with Alzheimer’s and Dementia Charities, as we all have vastly different needs and requirements, depending on the type of dementia and the stage we are in.
For a long time I was quite active with one charity and then stepped back through problems, but at the same time my life was being run by charity work, and there was little time to step back, take it easy and think clearly.
Coupled with this was the fact that my family life took a back seat, and that was becoming very hard. I really wanted to see more of the family and also spend time with my hobbies, and this was not happening, I guess it becomes too hard to say no.
I know that dementia is a well-known illness, but it does need to be given more of a high profile these days, as many still associate it with an age related illness.
We all know that this is wrong, as there are many under the age of 65 who have the illness, so it can strike at any time and any age.
Many charities…