Our story
The bronchiectasis Foundation is a new charity formed on the 6th of April 2016 by bronchiectasis patients. Together our trustees share similar stories of the daily difficulty in battling this chronic lung condition.
By bringing the support, expertise and passion of our trustees together, we believe we have a strong new organisation that is focused on supporting other bronchiectasis sufferers.
Our journey to this point has not been easy, however a strong charity fighting for those effected with bronchiectasis is very much needed. Our drive and determination comes from the fact we have similar stories of being diagnosed with bronchiectasis far to late having all been labelled with having Asthma from childhood. This is sadly all to common and needs to change.
WITH THE UNITED SUPPORT OF THE BRONCHIECTASIS COMMUNITY IN THE UK, YOU CAN HELP US BRING ABOUT CHANGE.
TOGETHER WE HAVE A STRONGER VOICE!
By bringing the support, expertise and passion of our trustees together, we believe we have a strong new organisation that is focused on supporting other bronchiectasis sufferers.
Our journey to this point has not been easy, however a strong charity fighting for those effected with bronchiectasis is very much needed. Our drive and determination comes from the fact we have similar stories of being diagnosed with bronchiectasis far to late having all been labelled with having Asthma from childhood. This is sadly all to common and needs to change.
WITH THE UNITED SUPPORT OF THE BRONCHIECTASIS COMMUNITY IN THE UK, YOU CAN HELP US BRING ABOUT CHANGE.
TOGETHER WE HAVE A STRONGER VOICE!
The foundation
Improving the lives of people with Bronchiectasis is central to everything we do. We want everyone with the condition to live as full and unlimited a life as possible, until we find a cure.
Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. We invest in innovative research projects at the forefront of the field.
We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016.
Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. We invest in innovative research projects at the forefront of the field.
We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016.
Who we are
We are the Bronchiectasis Foundation, the only UK Charity dedicated to improving the lives of people with Bronchiectasis.
We are here to improve awareness and understanding of this condition, to support those affected, and ultimately, to find a cure through research.
We aim to support the 100,000 people who have Bronchiectasis in the UK. Our aim is to reach out to every single person who has a Bronchiectasis diagnosis, providing them with the information and support they need.
By creating connections between people with the condition and professionals, we aim to build a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about Bronchiectasis. We have a much stronger voice together.
Our vision
We are here to improve awareness and understanding of this condition, to support those affected, and ultimately, to find a cure through research.
We aim to support the 100,000 people who have Bronchiectasis in the UK. Our aim is to reach out to every single person who has a Bronchiectasis diagnosis, providing them with the information and support they need.
By creating connections between people with the condition and professionals, we aim to build a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about Bronchiectasis. We have a much stronger voice together.
Our vision
Our vision is to bring together and support those effected by Bronchiectasis, raise awareness and strive to improve treatments
Our mission
Our mission is to improve the lives of everyone affected by Bronchiectasis. We do this by investing in research, improving awareness and understanding of the condition and providing information and support to all those affected.
What we do
Improving the lives of people with Bronchiectasis is central to everything we do. We want everyone with the condition to live as full and unlimited a life as possible, until we find a cure.
Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. To invest in innovative research projects at the forefront of the field.
We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016
Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. To invest in innovative research projects at the forefront of the field.
We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016
Who we are
Key points
The Bronchiectasis Foundation is the support and research charity for everyone affected by Bronchiectasis.
- We provide support for the growing number of people affected by Bronchiectasis.
- We bring people with Bronchiectasis together to share experiences and create a powerful voice for change.
- By funding cutting-edge bronchiectasis research to find new and better treatment and ultimately find a cure for this debilitating condition
- We promote early diagnosis of Bronchiectasis. Early diagnosis and treatment is vital in order to lessen lung damage.
- Bronchiectasis disease affects more than 100,000 people across the UK. We're here to support everyone of them.
Living With Bronchiectasis
The most important considerations for patients with bronchiectasis are the following:
1. They need to perform regular lung clearance techniques to prevent phlegm and bacteria accumulating in the lungs. Except for patients with mild bronchiectasis, this will probably need to be done once or twice a day.
2. When an infection develops, the patient needs to start antibiotics as quickly as possible as this allows the infection to be brought under control more rapidly than if the antibiotics are delayed. Most patients should therefore have a reserve course of antibiotics at home. And it is important that the antibiotics are taken for 10 to 14 days to ensure the infection is well-controlled and less likely to return when the antibiotics are stopped.
3. To help prevent infections, the patients should have an annual vaccination against flu, and be vaccinated against pneumonia. And they should never smoke cigarettes.
4. Some patients may need to take inhalers, nebulisers or continual low dose antibiotics as well.
1. They need to perform regular lung clearance techniques to prevent phlegm and bacteria accumulating in the lungs. Except for patients with mild bronchiectasis, this will probably need to be done once or twice a day.
2. When an infection develops, the patient needs to start antibiotics as quickly as possible as this allows the infection to be brought under control more rapidly than if the antibiotics are delayed. Most patients should therefore have a reserve course of antibiotics at home. And it is important that the antibiotics are taken for 10 to 14 days to ensure the infection is well-controlled and less likely to return when the antibiotics are stopped.
3. To help prevent infections, the patients should have an annual vaccination against flu, and be vaccinated against pneumonia. And they should never smoke cigarettes.
4. Some patients may need to take inhalers, nebulisers or continual low dose antibiotics as well.
Why we need your support
The Bronchiectasis Foundation is the only charity in the UK especially for people affected by Bronchiectasis. There are over 100,000 people in the UK living with the condition. Awareness of Bronchiectasis is quite low and many people remain undiagnosed for many years.
The Bronchiectasis Foundation aims to:
Raise awareness of Bronchiectasis among the general public and healthcare professionals.
Provide research and educational grants to healthcare professionals.
Campaign on issues relevant to people affected by Bronchiectasis.
Without your help, we would not be able to achieve these aims.
The Bronchiectasis Foundation is the only charity in the UK especially for people affected by Bronchiectasis. There are over 100,000 people in the UK living with the condition. Awareness of Bronchiectasis is quite low and many people remain undiagnosed for many years.
The Bronchiectasis Foundation aims to:
Raise awareness of Bronchiectasis among the general public and healthcare professionals.
Provide research and educational grants to healthcare professionals.
Campaign on issues relevant to people affected by Bronchiectasis.
Without your help, we would not be able to achieve these aims.
Fundraising
Fundraising
Amazing! Are you thinking about fundraising for the Bronchiectasis Foundation? That would be absolutely brilliant - we would love to welcome you onto our team! The Bronchiectasis Foundation relies on the energy and generosity of people like you to change the lives of those that are affected by Bronchiectasis.
Wherever you are, there are lots of ways to make a difference. Why not arrange a run, cycle or dare wee suggest a skydive?
If you would like to setup your own fundraising page to do an event on behalf of the foundation , just click on the link below to go through to JustGiving.
Here you can create your page and share it with your friends on Facebook as well as others on the platform who may add to your donations.
Wherever you are, there are lots of ways to make a difference. Why not arrange a run, cycle or dare wee suggest a skydive?
If you would like to setup your own fundraising page to do an event on behalf of the foundation , just click on the link below to go through to JustGiving.
Here you can create your page and share it with your friends on Facebook as well as others on the platform who may add to your donations.
If you, a family member or friend, has Bronchiectasis we would love to hear your story. First-hand experiences from people living with or affected by Bronchiectasis can help other people understand or come to terms with the condition.
If you would like to tell your story please send it to us. Your story could then appear in the patient stories section of the website.
info@bronchiectasisfoundation.org
If you would like to tell your story please send it to us. Your story could then appear in the patient stories section of the website.
info@bronchiectasisfoundation.org
My thoughts
I have produced this to give the Bronchiectasis foundation extra publicity, and hope it works
I was told by an X-ray department that I had COPD, but after seeing a chest consultant it was confirmed that I had Broniectasis.
Bronchiectasis comes under the umbrella of COPD, and many people are just told they by doctors that they have COPD without giving any other information.
But it's very important to get the correct diagnosis, so that we can move on with our lives and adjust things to fit.
It's also very important that we are given as much information as possible at the point of diagnosis, so we can understand what the illness is, and what we should expect.
This would also give us an idea as to when things are getting to the stage, where we need to see a doctor
There are many charities out there covering many illnesses, some cover all brainand memory illnesses or chest problems etc, while others specialise in one individual illness.
This is where the Bronchiectasis Foundation comes in because, it specialises in Bronchiectasis and nothing else.
It's prime role is to help and support those who have been diagnosed with Bronchiectasis, and give them somewhere to get help on line etc.
I know that the British Lung Foundation has been around for a long time and covers all lung and chest problems, but we are all individuals and all have different problems and needs, and sometimes this is where smaller charities come in, as they can speicialise in certain parts of the illness.
There is an old saying, From a small acorn grows a mighty oak, and I like to think of small charities like this.
Having said that all charities rely on public subscription and support, and I do hope that people in the UK will support the Bronchiectasis Foundation, if they are considering doing fund raising events.
All charities are being starved of support by governments and therefore it's up to the public to help support them in anyway possible.
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I always say that we may have this illness, but we are all so different.
This is my own daily problems, but I would gladly share anyone elses, if they send them in,