Showing posts from 2015

Happy New Year

I would just like to wish all my friends a very Happy New Year,and hope 2016 is a good and healthy year.
I confess that this year has been very difficult to cope with, but I hope things will settle down next year.

Merry Christmas

I would just like to wish you all a Merry Christmas, and hope you all have a lovely day.

Letting this blog go now

I am letting this blog go now.

This is for various reasons, one of which is that I am being transferred to another larger hospital for the diagnosis to be completed, after problems with one of the doctors who could not be bothered to go through her reasons for her rediagognisis, and would not answer my wife's questions.

I am now under a top specialist at a different hospital, but I am prepared for the diagnosis to be changed to mild cognitive impairment, if it goes that way, because they are taking the time to explain things properly and that means a lot these days. They treat people with dignity and respect.
I may not have a dementia, but I know that my short term memory is rubbish, and I just have to move on.
However since my chest infections kicked in again 8 weeks ago, I have since been diagnosed with COPD, Chronic Pulmonary Obstructive Disease, and have therefore decided to take things easy and try to get myself sorted out
This has also caused extra problems with my thinking…

RIP Peter Ashley Dear Friend and Mentor

Yesterday I heard the very sad news, that my old friend and mentor Peter Ashley had passed away.

Peter was a loving father, husband mad friend to hundreds of people, and I was honoured to meet him, and call him a friend.

I knew Peter had been ill, but I guess that my attention had been on my continuous chest infection problems over the last few months, and then being diagnosed with COPD.
I first met Peter around 2005 after my diagnosis of Lewy body Dementia. I had been in the local Alzheimer's Society Office and the manager had spoken to me about an event which was being run in Newcastle upon Tyne.
This was the first UK Convention for people with Dementia. I confess that at first I thought it was going to be run for and by professionals, but was very surprised to see people like Peter, Trevor Jarvis and James McKillop on stage talking about living well with Dementia.
I confess that it was a shock to hear so many people with the illness standing up and talking about their lives and h…

Alzheimer's disease: Online brain training 'improves daily lives of over-60s'

From the Daily Telegraph
Alzheimer's disease: Online brain training 'improves daily lives of over-60s'
Researchers discover that cognitive training can help with tasks such as using public transport, shopping, cooking and managing finances

After six months the over-60s who took part in the brain training were found to have significant improvements in carrying out daily tasks
Playing online games that exercise reasoning and memory skills could have major benefits for older people, a wide-scale study has found.
Researchers at King's College London discovered that mental exercises, or"brain training", can improve people's everyday lives, helping with tasks such as using public transport, shopping, cooking and managing personal finances.
Almost 7,000 people over the age of 50 were recruited from the public through the BBC, Alzheimer's Society and the Medical Research Council to take part in the six-month experiment.
Some participants were encouraged to play a 10…

Weather changes again

I guess the weather has changed again, because the chest infections have started all over again.

It all started three weeks ago and up till earlier this week I was on my second course of antibiotics, but it did not clear. I had sent to sputum test in, and had an X-ray to see if there was a deep seated problem as this keeps getting worse every year.
Even the asthma test was well down, compared to where it should be, but that's been dropping every year.
Today I returned to see our new family doctor after the last chest X-ray, and was told that it was COPD, Chronic Obstructive Pulmanary Disease. I knew that after years of working in industry my lungs were not working as they should have been, but you never really think of things like this when you are young, and regulations have changed quite a lot over the last 20 years. 
But after struggling with chest problems since being a child, it now explains most of my problems.
I have had quite a few chest X-rays over the last few years, but now …

Alzheimer's Society comment on Amyloid brain scans changing dementia diagnosis and management

This article was sent to me via the Alzheimer's Society.I had never seen it before but hopefully it helps others like me to understand more about these scans

Alzheimer's Society comment on Amyloid brain scans
Alzheimer's Society comment on Amyloid brain scans changing dementia diagnosis and management · Published 22 July 2015

The use of Amyloid PET scans may change the way that doctors manage and diagnose their patients with dementia, according to research presented at the Alzheimer's Association Conference today (Wednesday 22 July).
The scan can show whether someone with memory problems has deposits of amyloid in their brain, the classic hallmark of Alzheimer's disease.
The study focused on doctors in France, Italy and the US who were treating 618 patients who had been diagnosed with mild cognitive impairment, where Alzheimer's was being considered as a possible cause. All patients were given a diagnosis and management plan by their doctors before undergoing an amylo…

Cancer Drug, Nilotinib, Found To Have Positive Effects On Dementia Patients §

Cancer Drug, Nilotinib, Found To Have Positive Effects On Dementia Patients
§ From penicillin to potato chips, some of mankind’s greatest discoveries were found by accident.  The story behind a drug called nilotinib appears to be no different. Originally approved as a treatment for leukemia, nilotinib seems to be having notably positive effects on patients with certain types of dementia, particularly Parkinson’s disease with dementia, and Lewy body dementia. Nilotinib’s efficacy in treating dementia was discovered in a recent pilot test of the drug, after which researcher’s related the outcomes at the Society for Neuroscience meeting in Chicago on Saturday.  According to them, of the 12 patients who were given small doses of nilotinib, movement and mental function improved in 11 of them.  The results of the final participant were inconclusive as they didn’t complete the six month trial. According to Fernando Pagan, an author of the study and director of the Movement Disorders Program at Ge…

Nurses launch booklet to aid hospital dementia care

Nurses launch booklet to aid hospital dementia care Good Hope Hospital in Birmingham has launched a new booklet designed to improve care for patients with dementia during their hospital stay. The user-friendly booklet – About me – can be filled in by the health professional that cares for them. “People with dementia can become agitated when they are in an unfamiliar environment” Rachel Martin It is designed to provide a snapshot of the patient, including their likes and dislikes, daily care needs, food and drink preferences and how they like to be communicated with.  A “forget-me-not” flower magnet – the national symbol for dementia – is also placed on the patients name board to show staff that they have memory problems and can adjust their care needs accordingly. The initiative was developed by a range of staff at Heart of England NHS Foundation Trust, including specialist nurses.  Following the successful pilot at Good Hope Hospital, it will now be rolled out across the trust’s other hospit…

Has the Church if England lost the plot

UI was brought up as a member of the Church of England from the age of 5 in 1952,  and was then in the choir when I was old enough, for over ten yearsThis was when we had clergy who really wanted to know about their community
At this time our rector used to be on the streets everyday meeting people, and getting to know what was happening in and around the town, and local villiages.
He used to own a car, but preferred to cycle, so that he could stop and speak to all he met, when travelling around the villiages.
Now they work one or two days a week, and are never seen in the street in their dog collars.

But over the last few years I fear that they have lost the plot and have no real idea about life outside.
I fear that the monks in middle age England, were more knowledgable than some of the modern day clergy, and they were more caring.

I say this because most of the regular people are elderly, and these are the people who keep paying towards the churches upkeep.
Yet these people are largely us…

Off for a brain scan

I have been booked in for an EEG brain scan next week, so that they may be able to get to the bottom of my problems.
I as not expecting this for another two months, but whether there has been a cancellation, we do not know.
I guess that this comes from the fact that at one stage I was thought to have had temporal lobe epilepsy. 
Then when I was diagnosed as having Lewy body dementia, I was told that it could not have been epilepsy, so I just do not know who or what to believe 
I also have to get some blood tests done sometime soon, to check if my auto immune system is working properly. 
I confess that I know very little about the auto immune system, so I do not know what it does, or how this could have an effect on my problems.
But at least things seem to be moving properly now and that has to be positive 
This is a very difficult illness to diagnose, as I found out some time ago, when an old friend who had been diagnosed with it ten years ago, has now been rediagnoesd as having memory and t…

What is Lewy Body Disease

What Lewy Body Disease Is On this page: Lewy body disease is a kind of dementiaWhat are Lewy bodies?Symptoms of Lewy body diseaseTreatmentWhy do some people get Lewy body disease?For more information        Lewy body disease is a kind of dementia Lewy body disease is a kind of dementia. Dementia is a general decline in cognitive abilities (thinking, memory, language, etc.) usually due to degeneration of the brain. There are many kinds of dementia. The most common and best known kind is Alzheimer's disease. Lewy body disease is thought to be the second most common kind of dementia. It causes cognitive problems similar to those seen in Alzheimer's disease and motor problems like those in Parkinson's. Like Alzheimer's disease, Lewy body disease is currently incurable and it gets worse with time. It should be noted that there are some kinds of dementia (for example, those caused by a thyroid problem or a deficiency in vitamin B-12) that can be reversed. That's why it'…

Types of dementia

Taken from Alzheimer's Net

A few decades ago, only a few medical specialists would have heard of Alzheimer’s disease. “Senility” was considered inevitable for anyone who lived long enough. But as understanding of the brain has grown, science has been able to identify and differentiate many causes of dementia. Alzheimer’s is the most common type of dementia, but other brain disorders can and do frequently cause dementia. These types of dementia often present themselves with very similar symptoms. Even trained physicians may have a trouble determining for certain which type of dementia a patient has, and some people experience multiple types of dementia concurrently, which is called “mixed dementia.” That said, newly acquired knowledge and technologies are allowing doctors to diagnose and distinguish different types of dementias better than ever before. Here are the four most prevalent forms of dementia. Alzheimer’s Disease Alzheimer’s disease is by far the most well-known and common ty…