Three in four GPs say controversial dementia DES did not benefit patients
Exclusive: Three in four GPs say controversial dementia DES did not benefit patients
Three quarters of GPs say the controversial scheme to pay practices £55 per new dementia diagnosis did not benefit patients, a survey by GPonline has found.
NHS England says that early diagnosis allows dementia patients and their carers to ‘plan their lives better, to provide timely treatment as appropriate, to enable timely access to other forms of support, and to enhance their quality of life’.
But of 427 GPs who took part in the poll, just 15% said the Dementia Identification Scheme DES - which ran from October 2014 to March 2015 - was helpful to patients.
GP respondents critical of the scheme said early diagnosis meant prolonged anxiety for patients, who did not have sufficient support available after a diagnosis.
Dementia DES anxiety
One GP said the scheme was ‘poorly thought through’ and ‘a cause of unnecessary anxiety for patients, with long waits for resulting referrals’.
Among GPs backing the scheme, one said it had ‘got some patients willing to talk about dementia’.
Professor Alistair Burns, NHS England's clinical lead for dementia, has previously said that ‘timely diagnosis of dementia allows people to access the emotional, practical and financial support that brings’.
But the vast majority of GPs – 83% of 424 – said that there was not enough support available to patients after a dementia diagnosis.
Lack of support
The NHS drive to diagnose dementia early led to the introduction of the Dementia Identification Scheme DES in October 2014. NHS England has said it wants to boost diagnosis rates so that 67% of people estimated to have dementia will receive a formal diagnosis.
74% of GPs surveyed also said that the DES had not changed the way they dealt with patients with suspected dementia.
Of those who said they had changed their working practice as a result of the DES, some GPs commented that they were more likely to refer patients, and were more proactive in identifying patients.
However, some GPs said they were doing more ‘unnecessary’ blood tests and one respondent said that the DES meant they now ‘deal with significantly more patient concerns as a result of this and workload increased with little improvement in outcomes’.
GP financial incentive
Some GPs said they were concerned with the financial incentive to diagnose dementia and how this was portrayed in the national media, echoing previous comments from the GPC about the ‘framing’ of the DES.
It is ‘harmful to suggest that GPs are diagnosing purely for a financial incentive when actually we aim for good patient care’, one respondent said.
Some comments said resources used to fund the DES would have been better used elsewhere, with one GP warning that 'improving the care of those with dementia so that the diagnosis was no longer seen as entering a void of support’ would be more helpful.
NHS England will continue to strive for its 67% diagnosis ambition as part of the Prime Minister’s Challenge on Dementia 2020.
Dementia and Eyesight problems I noticed some time ago, that my eyesight was giving me
problems when trying to read and concentrate on things like my blog, but when I
got my eyes tested I was told there is nothing wrong.
I know that my brain fluctuates quite regularly during the
day, through my Lewy Body Dementia, and I go from being active to not being able
to work things out, so I am now wondering whether this has some effect on my
eyesight as well as this also fluctuates, and after a while it becomes annoying. I sometimes get blurred vision and other times I see double.
I had double vision problems many years ago and it was corrected, but that was
before the Lewy Body dementia started.
I confess that I am starting to wonder if the dementia is
behind this, especially as it’s intermittent and not there all of the time. I
try to keep myself active but when this starts it causes upset as I cannot do
the things I want to do, or cannot see properly to concentrate.
New international guidelines to identify dementia with Lewy bodies
Published on: 8 June 2017
From Newcastle University
New guidelines have been published on the clinical and physical indicators to help ensure patients with dementia with Lewy bodies get an accurate diagnosis and the best care possible.
Professor Ian McKeith
Our guidelines now distinguish clearly between clinical features and diagnostic biomarkers, and give guidance about the best methods to establish and interpret these
Professor Ian McKeith
The death of Hollywood actor Robin Williams in 2014 threw the condition into the spotlight as it was identified he struggled with the illness.
Now scientists at Newcastle University have led an international team of experts to produce new recommendations to help diagnose the disease more accurately and improve management of the complex disorder.
According to research published online today and in the July 4, 2017, issue of Neurology®, the medical journal of the American Academy of…
I had never realised until recently just how much a chest infection changes a person with a neurological illness like dementia.
I had a bad one three weeks ago and realised that I was going up the wall, and was doing and saying things that hurt my wife, or at least I did after I did it.
I honestly do not know how this happens but it is hurtful to everyone around, at the time, as we do things which are totally out of character.
I have been diagnosed as having another yesterday, so that must be about the sixth one this year, and its getting me down.
I thought I was alright in the morning apart from being chesty, having a horrendous headache and coughing up loads of rubbish. We then we went out shopping where I went dizzy and ended up hanging on to the shop shelves for security
After a while my wife rang the doctors to get an appointment before they closed for the weekend.
But these people seem to have vastly different ideas, each time you see the doctor that is in the clinic when we …