Alive and still active

A recent advert from the Alzheimers Society telling us that people with dementia supposedly keep dying

over and over again, is in many peoples views insulting and so negative

This is because it is well known that if you remain active, you live well with the illness.

In the words of my Consultant, if you cannot do something one day, leave it till the next day, if you cannot do it then, try again on the third day. If that fails forget it and move on, otherwise I would get depressed and that would only make things worse

Yes we may lose the ability to do certain things that were easy in the past, but thats not the end of it. I lost many hobbys because they became dangerous, and although that was upsetting, i did not die?

I often wonder who writes these adverts especially this one, because its done more harm than enough and has upset quite a lot of people because its so negative

I guess if you dont have the support of family and good friends, you may feel upset and isolated, but that again is not dying

Many years ago as one of the Alzheimers Societies Ambassadors, along with another Ambassador Peter Ashley were asked to help write a booklet on Lewy Body Dementia, which then got printed.

The next we heard of it, was that it had been scrapped because in the view of one of their proof editors,

it was too graphic, because we had mentioned the graphic nightmares which are quite common in this illness.

But the person who objected had no idea about the illness, but rather than discussing it, they had it scrapped

Yet they have the nerve to say people with dementia keep dying again and again