What information should be provided at or after the diagnosis
Too much information can be disastrous the same as too little, so a balance needs to be found.
I suppose every consultant has vastly different ideas of what to tell the patient, but I also think they have a duty to tell us as much as we need, as we like it or not are going to have to find a way of dealing with a new life, starting with an illness we have done nothing to attract.
We have to deal with any medication which may be available to us, along with the side effects which can cause a lot of upset.
Types of medication which may help you
Sometimes bad dreams and very graphic nightmares, and how carers can help us to deal with them when they happen
Falls and balance issues
Problems with certain Medical product as people with this form of illness are very sensitive to certain medications.
We need to strike the correct balance so as not to over load or frighten people.
I suppose that we must accept that some people only require a little information while others would like as much information as they can get.
So allowances must be made for all.
I do think that its important to have someone to discuss this information with, so that you get the correct answers to any questions, rather than being left to look on the internet where you may get conflicting answers.
If anyone has any ideas I will gladly pass them on to the team.