There are many ways of looking at the diagnosis of dementia,
although in the mid to later stages of the illness there may be little we can
do to change things. However in the early to mid-stages, I feel that it is
important to try to get on with life and if possible start a new life.
My consultant told me to keep looking forward and to forget
the things that were becoming hard to cope with.
Through this I have moved on, but many cannot do this as
they struggle to come to terms with the illness, through either denial or the
stigma which we see attached to this illness, or in some cases the illness was
simply too late in being diagnosed.
I am contacted daily by email either from this blog or
through other means about my problems, some of which have been discussed in the
blog, and where possible I try to answer them.
But in my answer there is always one comment, and that is we
are all different with vastly different symptoms and problems, even in one
variation of the illness. We are all individuals, and go through the illness
our own individual way.
It’s very important
to keep as active as you can, either with hobbies or finding something new to
do, even though it may be hard to get going, because the benefits are massive.
The thought of sitting down and doing nothing never ever,
got into my thoughts, as that would have been the end, just like giving in to
the illness.
Yes I had a strong willed wife and Daughter who would not
let it happen, as they were even more determined to keep me active.
I confess that I had not bargained for my daughter, when she
said that she was not ready to let me go, to the illness and I was going to do
as I was told?
I love her dearly as I do my wife, and they keep me going
when times are hard.
I have met a few people who do nothing at home and they all
seem to be sliding away, from their families.
To me, keeping active is one important way to keep the
illness at bay, but I admit that not everyone can do this.
I was encouraged to keep active, but I cannot swim these days
as I have lost my coordination and tend to swallow more water that enough.
I don’t go to the Gym because I cannot remember what I am
supposed to do, so I walk as much as I can each day.
At least walking can be done in my own time and at my own
pace, and this encourages me to do as much as I can. I am also considering
getting a small dog, which will be company when I am out and could also give me
more confidence, so I know that I will carry on walking for as long as possible.
Keeping the brain active can also help by doing things like
crossword and word search puzzles.
I used to love Mahjong but that is limited these days due
to my eyes, which are giving me a hard time, as I have double vision art times.
I no longer attend as many meetings like I used to do, but I
still try to enjoy myself as much as I can.
But each time an obstacle comes my way I try to find
something else to do as sitting still is something I find difficult
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I always say that we may have this illness, but we are all so different.
This is my own daily problems, but I would gladly share anyone elses, if they send them in,