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Showing posts from May, 2016

Lovely day in Richmond

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The other weekend we had a lovely day in Richmond Yorkshire where we went to the market, followed by a walk around the town, and then finished off visiting the castle built in 1071.

We travelled there on a small service bus, from Barnard Castle where we have a static caravan.
The journey takes longer than expected, but you do travel through many small and beautiful villages, and see places that would be missed or never seen if you went there by car. To be honest it's well worth seeing these lovely villages and the countryside while you are in this area, because it shows Yorkshire as it should be seen.
The market was smaller than we expected, but the people in this area are lovely and friendly.






The castle is owned and run by English Heritage, and we decided to have a look around especially as I had taken my camera. I never expected to climb the tower, but as it was a good day, I decided to see how far I would get, because I was feeling much better than I had been. However I did re…

COPD/Bronchiectasis?

I had chest problems from being a child with measles and whooping cough etc, then my mother told me that a doctor had said that I had a smokers cough at the age of four years old 
When I started working, I had asthma, which was put down to working in industry, but whether this was made worse because of childhood problems I am not sure
I then started having more and more chest infections, which I confess was confusing and distressing as I had no idea what was going on
In 2000 I was in hospital with Pnuemonia and felt really ill for a while, then things seemed to get better.
Two years later we moved back to the North East to the family home after my memory failed and I was diagnosed with early onset Lewy Body Dementia, because of which I lost my job and home through being told to retire on medical grounds
Then the chest problems reappeared with a vengeance all over again, and I was on antibiotics nearly ever winter etc. 
Eventually I was sent to see a chest specialist for assessment an…

Where is your wife

The other day I had an appointment at a local hospital, some thing which had been arranged for months, but it was within walking distance, so as far as I was concerned I was happy as it was a place I knew very well and was comfortable there.
However the day of the appointment my wife had a problem with one of her eyes, and after contacting the doctors she was told to go straight to the local eye hospital to get it checked out, because there was a worry that it could be a detached retina or something like that. 
So it was decided, that as it was too late to cancel the appointment, I would just go and take a tape recorder with me so, that my wife knew what happened 
The place was very noisy with loud music and loud voices, so in the end I turned the recorder off for a while.
However when I walked in to the room, I was confronted with a doctor asking where my wife was and why she was not there, as my notes said that I have memory problems?
Then he asked for the list of medication I was taking…

Just what happened

After being an engineer for many years, and being able to sort problems out all hours of the day, whether that was during the day or middle of the night, I am now at the stage where planning something can be distressing.
Most of the time it's near enough impossible to work out how to do things. 
Things like ironing which I got used to doing while my wife was in hospital for nearly three years on and off after a serious road accident. These days ironing is out of the question because I can never get the creases in the right place, but I think that's down to perception.
These were the days when I could multi task as I have been reminded many times.
Multitasking has long gone, as has my coordination which can be upsetting at times.
Sometimes simple things like putting shopping into a bag can be a minefield, because I usually end up struggling with the shopping bag hand holds. 
If someone had told me years ago, that I would struggle with simple things like that, I would have thought tha…

Stunning scenery

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This afternoon I went for a walk down through some woods in Barnard Castle.

I was completely staggered at the colours of the wild flowers while walking down the hill, there seemed to be a blanket of colour.
I could not get down to the bottom of the woods to get a better photograph, and was only carrying one lens so I was restricted As a child living in the North of County Durham, we used to play in an area called bluebell woods, but I do not remember anything as spectacular as this.










I only go so far because I was feeling very chesty, but there must have been millions of blurlpbells covering the hillsides 
I was down here a lot last year, but never saw this vast expanse of colour, and everyone who stopped was talking about it looking so beautiful.



This is a stunning place where I enjoy sitting and watching nature in all its colours and beauty  It's so peaceful and a lot of people love this area, because they can relax.









The downside wa the fact that I needed my inhaler to get back…

You cannot have dementia

A few years ago just after my diagnosis for early onset Lewy Body Dementia, I had problems with my water works, but as the consultant was unsure as to whether it was the Exelon causing it or not, I was sent to see a specialist in this subject.

Once I was there my wife asked if she could go with me to see the consultant because of my poor memory.
 It was agreed by the nurse, but when it came to the consultant, he refused saying that there did not seem to be anything wrong with me and certainly not dementia.
He even refused to discuss the Exelon, so it went no further as he was rude and arrogant.
When I saw the dementia consultant again, she looked at my wife in sheer horror and said, since when has the brain been in the bladder? and how can you tell by looking at someone that they have dementia?  It is an illness which shows very few if any, visible signs, unlike a broken leg etc. 
After a few weeks a follow up letter came, suggesting three different hospitals where they looked into b…

Pleasant walk down to the Tees

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Last Sunday I had a lovely walk down through Barnard Castle and crossed a footbridge to walk along the banks of the River Tees.

This was a lovely peaceful walk and many people spoke which made you feel wanted, rather than in some places where you are ignored because you are not from that locality.





I have found that some walks can be unnerving if you feel unsure of yourself, but I really enjoyed this walk, watching canoes on the Rapids etc.







It was amazing to see so many flowers growing along the banks of the river, and added to the natural colour.





At one point I stopped and looked at the river bed which is solid rock, and there were shrubs and trees growing out of the rocks, something that was hard to imagine.


The Rock bed with trees and shrubs growing out of the rocks  

one of the old alley ways
Butter Mill

                                                    One of the many sets rapids

Getting the correct Diagnosis first time

When you have been diagnosed with any illness whether it's short or long term, it's right that you get the correct diagnosis.

This is because you can be living under a cloud if you get told conflicting stories about what is wrong, or may be wrong with you.
I had a lot of trouble with one hospital who refused to accept my original diagnosis of Lewy body Dementia, even though it had been given by to prominent doctors.
This is because many refuse to accept that patients are individuals, and no two patients have the same problems and symptoms, or go down the same route
This caused a lot of unnessessary stress etc, and eventually after seeing two other consultants for a second opinion,  it was amazing how some doctors want things in black and white, it they simply will not accept it.
It's also amazing just how many of these people use different terms, which cause extra problems to the patient, because they are left wondering just what is going on, and also wondering just what …

Wonderful day in Richmond

On Saturday we had a trip out to the Yorkshire market town of Richmond as it was market day.
We travelled by the local bus service which was a long winded way as it went round all of the villiages on the route, but it was a beautiful journey through these lovely villiages.
When we arrived it was lunch time, so we had a walk around the market and some of the shops, then sat on a seat out side the Museum and had lunch while watching the world go by
After this we went into the castle as we are English Hertiage members, and had a look around. I then surprised myself and my wife by looking around the tower, and eventually managed to get to the top.  I don't usually get involved with things like these days, due to my osteoarthritis, breathing and eyesight problems, but over the previous few days I had been feeling so much better, and as long as I keep one eye closed, I can get through the days much better. So this was an achievement and I felt on top of the world, but also knew that I would p…

Dental treatment and the brain

Over the years I have dreaded going to the dentists, but I think that is down to the horrible treatment we were subjected to when we lived in Oxford.
The family had used a dentist practise, which appeared to use trainee dentists, and both my daughter and I ended up with teeth which had been repaired by someone acting as a dentist, but who also had no idea about the job.
After that I hated dentists as did my daughter, and simply did not trust them at all.
Then after my diagnosis of early onset Lewy Body Dementia and after moving back to the family home,  I was advised by my wife that I needed to go to the dentists 
Eventually I went and saw a new dentist who was a very pleasant young man, at least he was a lot younger than I was, so in my book he was young.
My wife explained my medical diagnosis, and said that I no longer trusted dentists, at which point he said that he alone would deal with my teeth.
Every time I went he took great care to explain any problems, both to myself and my wife.
In …

Drug discovery for dementia

Alzheimer's Society's flagship Drug Discovery programme is an exciting new approach to developing treatments for dementia.

Our innovative approach means that new, better treatments could be available in half the time of a standard drug, bringing hope to people with dementia and their carers.

It takes about 20 years and millions of pounds to develop a new drug from scratch.

Drug Discovery focuses on 'drug repurposing', which takes drugs that are already being used to treat other conditions and tests their potential as a treatment for dementia.

Working with national dementia experts, we carried out a review of existing research that was published in Nature Reviews Drug Discovery in October 2012. It identified five existing classes of drugs already in use for other conditions that show most potential for the treatment of dementia. The four most promising of these drug types are currently being tested, or soon to begin testing, in people with dementia in Phase IIb or Pha…

Sight, perception and hallucinations in dementia

People with dementia may experience problems with their sight which cause them to misinterpret the world around them. In some cases, people with dementia can experience hallucinations. This factsheet considers some specific difficulties that people with dementia can have, and suggests ways to support them. Understanding potential problems and giving appropriate help, support and reassurance can greatly assist people living with dementia to feel safe, at a time when the way they perceive reality may be changing. Vision and perception Seeing is a complicated process that involves many different stages. Information is transmitted from your eyes to your brain where it is then interpreted, alongside information from your other senses, thoughts and memories. You then become aware of what you have seen (it is 'perceived'). Problems that involve both vision and perception can be referred to as 'visuoperceptual difficulties'. As there are many different stages involved in the …

DK books and the memory

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Over the years I have loved my photography as it s a relaxing hobby, but over the last few years my memory has destroyed most of my hobbies, because I forget how to do things.

Last week my wife bought me a new Dorling Kindersley book on photography in the hope that it will help me to keep going. 
I was amazed when I looked at it because it was written in such a way, that everything was explained in easy to understand terms, and it helped to trigger some of my memories. 
The book was called Digital photography the complete Course.






Over the years we have bought many of the DK books for our children and now grand children because they are well written, and they generate interest in young minds.
So to get this I have been kicked started back into photography all over again.
 I confess that I know that the bad days come along, nothing is going to help me because I just completely forget what I have just done, so if I have changed the camera settings I am stuffed. 
But it's a step in t…