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Showing posts from November, 2017

Technolgy and dementia

First written 2014 and amended November 2017


Technology is a lovely thing, if you can use it and understand it these days
Children are growing up with various forms of technology these days, and although they will adapt to newer forms of technology in the future, but I do wonder if they will be able to function without it, when things go wrong
When we go into supermarkets these days, we see modern technology at the checkouts, but if there is a power failure, the store must close, because no one can add up without the technology any more.
When I was young, the store staff added up your bill, usually on the piece of paper where it could be seen and checked, but those days have long gone
However, these days many elderly people have never come across some of this technology, and in many cases, they may not want to use it.
I confess that I don't cope with the self-service checkouts very well, and tend to join the big queues waiting to be served by real staff, rather than a machine
There…

Information pack for diagnosis of dementia

The other day I found this old 2006 blog about the information pack we were given, after my diagnosis of Lewy Body Dementia in County Durham, in 2005 
It was done as a way of helping newly diagnosed people negotiate the system. Information pack for those newly diagnosed as having Dementia
This pack was produced by our local branch of the Alzheimer's Society, with help of our local County Durham Dementia hospital.
The pack contents were: - Information about Lewy Body Dementia, including symptoms and complications etc. Information about the medication I was being put on
Information about the local groups within our local Alzheimer’s Society branch, including Carers Support, Dementia Cafes, and Discussion Groups for those living with dementia etc. Phone numbers of our local branch staff
Direct phone number of my hospital consultant, for emergency.
Phone numbers of the Dementia Hospital staff, including an emergency 24-hour number, which got the carer direct to an on-call doctor or nurse at…

What would you do to stop Alzheimers

The other day some one asked this question on social media 
If you thought you were going to get an illness like  Alzheimer's disease, or Dementia  what would you do, or would you want to know what was coming.
I guess many like myself would be utterly terrified of the thought of getting one of these illnesses, but in all honesty, there really is nothing we can do to stop it.



I thought my life was coming to an end, when I was given the diagnosis of early onset Lewy body dementia, but my wife and daughter had other ideas, and without their support I would surely have given in altogether

This was before my second diagnosis  after we had moved  home, after losing my job. 
It was then we found out that my original notes had been lost by the first hospital
So I had to be diagnosed all over again, but after this diagnosis was confirmed again, I got more support and help than the original hospital had given me
I was told there and then to "REMAIN ACTIVE " and not to think of w…

Dementia and hobbies

Many people give everything up after a diagnosis of dementia, and simply give up the will to fight on.

 But others keep going with the it hobbies for as long as they can, while some even learn to do other hobbies, or even learn a different language, which is good.
Over the years many of my hobbies have been given up, either because I forgot how to do them, or they became too dangerous to do any more.
As far as art is concerned I don't seem to be able to draw properly anymore, which is upsetting.
When I was an engineer I could go and look at a job of work, then I would sketch it out, and measure it up, knowing that I could work from the sketches etc.  These days it's all gone and trying to sketch things is very hit and miss.
However, I do still fight to hang on to using my computer and my camera, and although I can't always remember the settings, I am still determined to hang in a long as I can
Other people have other hobbies, which vary quite a lot.
I know someone who now carves…

Balancing Act

Like many people, I find that life gets difficult, when you have more than one illness to think about, and this can cause extra problems with medication
Recently I was told that medication which supports us for one illness, can have the wrong effect on another illness which we may have
So in more than one way, medication can be a fine balancing act
I was diagnosed was having a form of Lewy Body Dementia,  something which never made any sense at the time, but I knew there was something wrong, because I was losing control over my job.
At first the doctors had thought it was something to do with  Encephalitis or something like that, because I had been very ill with pneumonia, but then the diagnosis of Lewy Body Dementia came out.
But at the same time I was struggling to cope while working, due to tremors and memory problems, which was hazardous, as I was trained to work on electrical installations  etc, and not the type of work which is easy when a tremor starts
I also had what was…

Derby Dementia Group

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Today I was sent a link to an Independent  Dementia Group In Derby, called the Hardy Group. 
This sounds a really nice group, for people living with Dementia, because it inspires them to remain active, after their diagnosis, when its far too easy to sit back and do nothing. To me this is everything a Dementia group should be, encouraging people to remain active, and I feel proud and honoured  to know both Dave and Heather Roberts, who put so much time and effort, into running this wonderful group However, like everything else these days,  it costs a lot of money to keep these groups going, but I am hoping that we can encourage people in this country to step up and help with the running costs, to a brilliant worthwhile charity.
Far too much money goes into these Larger Dementia charities, who don't provide the real services which are needed these days, so its left to the independent groups, like The Hardy Group to step up and provide these services
The Hardy Group is a small charity …

Fireworks

Many people enjoy fireworks,  and when I was younger I enjoyed them.
These days I struggle and get startled very easy, but I guess it's because these things are much louder than they were before, and my brain does not cope with noise the way it used to do.
Recently I wondered how military people coped with these very loud landmines as I believe they are called..
These things seem to shake the house when they go off, and I confess they terrify me at times.
To today I heard that the Chelsea Pensioners were writing to groups running firework displays, asking them to think about people with post traumatic stress, from military action.
While I don't think many people will take any notice, I confess that I cannot really  understand what these people may be going through when they came home injured from war. 
But they must be so mentally scarred, that these noises bring back many unwanted nightmares of war zones.
Trying to  live with the nightmares and horrors of what went on, a…

Inappropriate touching

I hope I got this title spelt correctly, because I struggle with my spelling  these days,  and don't always see obvious mistakes
But over the last week or so we have heard lots about inappropriate touching in the news, as far as parliament is concerned
But this is something that has always worried me since my diagnosis, because when you are living with Lewy Body, or and other form of Dementia, you don't always think of the obvious.
I confess that there are times when you don't think correctly,  and some people don't make allowances for your illness.
What used to be classed as normal years ago has now changed, and in some cases it's become a minefield to deal with.
I was always nervous when it came to the opposite sex, but after seeing the news recently I have started to wonder where this will all end up
I guess those in the news have had little regard towards the opposite sex, and that's been their problem
But I never know how to deal with people these days…