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Showing posts from May, 2017

Dementia and Comorbidities

I knew that there were similarities between Lewy Body Dementia and Parkinsons, but I have only just realised how close they are linked People with Dementia and memory problems struggle with other problems,  but it's not always taken on boardOver the years I have struggled to get my words out when I am in a group of people, or in a meeting, and thinking of the answers to topics fast enough, is something  I was good at in the past, but these days I struggle. This can occasionally  lead to me getting frustrated and agitated at times,  because i cannot get the words out, or think or the correct words, when i need to,  and sometimes the conversation changes so fast that it's a waste of time.This means that fast moving conversations and topics can be very hard to keep up at times, because you think of questions but are not allowed to interrupt until it's too late, by which time it's all forgottenI understand that this is all because it takes my brain longer to process things…

Dementia and the Church of England

Over the years I have been amazed at the lack of interest, the church of England has in people with dementia, memory problems or parkinsons etc,Many people grew up as members of the Church of England etc, and now feel like outsiders, because they are largely neglected by the church these daysI had started going to church from a very early age,  then joined the Church Choir at the age of 8, and carried on going, until my memory went haywire However as a person who grew up in a Church of England family,   I find it staggering these days,  that the church has so little time, or respect for people with memory problems etc. Yet these people,  are usually the ones who try to attend church regularly, and pay into the church plate every week.Yes many Churches have had dementia friends events,  but as a person who is religious, I know that is as far as it goesWe are tolerated, but not accepted in most churches.I have spoken at many events about this subject,  but in all honestly I don't fe…

Dementia Tax

After 5 hours I have managed to write this article, about something I find to be disgusting

Over the last few days we have heard all about the Tory Governments "Dementia Tax"But in all honesty,  I do  think that it's more than a Dementia Tax, it's a tax on all of those who have terminal illness in what ever form it is,  and need care at home Many people want to die at home these days, and why not. But if it was not for the savage cuts to Council Budgets, we would not be in this mess in the first place Social care is now mainly run by Private companies rather than our own council services, so it's going to cost a lot more
They also forget that most of the care at home is done by family members,  with a little support from outside, and that includes the "Government"There are better ways of cutting costs these days, but for some reason this Government does not want to look carefully at where cuts should be made.  They are hitting the vulnerable in this co…

Manchester

My thoughts and prayers  went out to all caught up in the Manchester bombing the other night. This sort of thing makes me feel very sick, and it's worse when children were the target, by a set of cowards. We were away at the time without internet, but I found that the media were acting like a lot of wolves, who had found something and would not let go because it was endless. I do think the media made things much worse because they kept showing photographs of the dead people, with total disregard to the families and those left  badly injured I hope that this sort of thing gets sorted out properly,  and we get away from this sort of terror for ever God bless our NHS staff in all departments including the Ambulance services, because without them we would all be lost There were many hero's here on the night,  who just got on with things, and never thought about the fact that there  could have been more bombs. Having said that these people will let not regard themselves as hero'…

Aging population

I think we all know, that most people are living much longer than they did years ago, but that's because medical treatment is much better these days, as well as the fact that we have much better living  conditions But its terrible when we hear people like politicians complaining about the aging population and blaming them for adding to,  or causing the Health service problems, and this makes me feel  annoyed Many of these elderly people have worked extremely hard in their lives,   and have  paid their taxes in full, unlike today where tax can be paid offshore, so that you can keep most of your money away from the government.  The thought of doing that years ago would have been looked at as fraud, yet these days it's quite common.But if everyone did this sort of thing there would be very little money to pay for things like the health services etc, and I think we are getting close to that point now, because so few people are paying their fair share of taxes in this country These…

Three Nations Dementia Working Group

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Three Nations Dementia Working Group 
Just after Christmas I heard that a new Dementia Working Group was being set within the Alzheimer's Society. Scotland has had its own Dementia Working group for quite a few years, so it was decided that the members of this group would be drawn from England,  Wales and Northern Ireland. The thought of doing something positive, and trying to improve the lives of people living with dementia, while removing stumbling blocks like the stigma we see and hear of on a daily basis, spurred me into action. This group allows us all to work together where our voices can be heard by all within Society  We have one member from each of the Alzheimer's Societies 12 Regions  

Chris Roberts,  North Wales,    Linda Willis,  and South Wales. Danny Brown &  Liz Cunningham, Northern Ireland. Ken Clasper,  North East England.     Joy Watson, North West England. Wendy Mitchell, Yorkshire and Humberside Shelagh Robinson, West Midlands.     Alex Preston, E…

Do Doctors really understand

6 weeks ago I got my final diagnosis of Bilateral Bronchiectasis and Emphysema, and my medication was changed. The only problem was that the clinic was running one and a half hours late, so there was little time to discuss medication changes.As well as my normal ventolin and Symbicort 400, I was put on a Spiriva inhaler once a day and mucus capsules which break the stuff free of my lungs each day When we went to see a family doctor, I felt as if I was wasting my time, as she really did not want to discuss my medication changes because, in her words, the hospital consultant should have done it.She also got rattled that she was expected to do my prescription, because she said the hospital should have done it.I asked what order I had to take the extra inhalers, but she did not say, and did not even look them up. In passing she said that once the new spiriva inhaler and mucus  tablets started working, I would not need to use my ventolin inhaler as much, and in all possibility I should be …

Deerness Nature Country Park and Low Force

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Last week my wife and I went for a drive up the Tees Valley through Middleton in Teesdale and on up to Deerness Country Park
We have done this on many occasions, but we felt it would be nice to go back again now that its been done up for the Summer
                Looking down on the Tees from a layby heading towards Middleton in Teesdale
Looking towards Middleton in Teesdale, a lovely little market town

                   Deerness Country Park bird feeders, which attract many different birds  




           Stone Sheep, with the inscription "ITS A WONDERFUL PLACE TO WALK" 


Two very young calf's  with two cows



         A very curious young Ram

                                                Low Force from the suspension bridge


   Looking down under the suspension bridge


Looking across Low Force
We had a lovely morning out here, and I felt a lot better when we returned. It had been a very bad day as far as thinking was concerned, but we did this before we packed up to hea…

Three Nations Dementia Working Group

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Three Nations Dementia Working Group 
Just after Christmas I heard that a new Dementia Working Group was being set within the Alzheimer's Society. Scotland has had its own Dementia Working group for quite a few years, so it was decided that the members would be drawn from England,  Wales and Northern Ireland. The thought of doing something positive, and trying to improve the lives of people living with dementia, while removing stumbling blocks like the stigma we see and hear of on a daily basis, spurred me into action. This group allows us all to work together where our voices can be heard by all within Society  We have one member from each of the Alzheimer's Societies 12 Regions   Chris Roberts,  North Wales,    Linda Willis,  and South Wales. Danny Brown &  Liz Cunningham, Northern Ireland. Ken Clasper,  North East England.     Joy Watson, North West England. Wendy Mitchell, Yorkshire and Humberside Shelagh Robinson, West Midlands.     Alex Preston, East Midlands Pe…

Big Issue?

The other day it was suggested by my wife,  that I read a book called "For the love of Bob", by James Bowen.This then lead on to me reading a second book in the series called "Bob No Ordinary Cat" by the same author This was a real life story of someone who fell on very hard times in his life,  and was adopted by a cat who he called BobWhile reading this story,  I really got to understand a little about the lives of some of the people  we see on the streets every day selling the Big Issue. These people are largely ignored in many cases as drop outs, but they are real people with real stories to tell. These days many of these people  seem  to be immigrants trying to find their way in society, however there are still lots of people, who may well have lost everything in their lives, and are fighting desperately to get some sort of regime and routine back.Unless you have been in this position, I don't suppose you would ever give them a second thoughtI confess that …

Trying to do the impossible

Even though I was an engineer for 28 years, and could turn my hands to doing most jobs in my early life, things are now vastly different These days, I usually find that a job that would have taken a short while to plan and do,  can take hours or days to sort out I my brain I know it's because my brain is failing, but it does not helpWhen I was at the nuerological department the last time, they said my planning skills are slower that they should be, and that's distressing after having a very active life as an engineer, and being able to sort oroblems out as I was going. But it's to be expected,  and it explains why it takes so long to write a blog out these days.  It does not help when I look at things at times, and don't always recognise them as I used to do.When you look at something that would have been classed as a simple job years ago,  it's now  become a major headache and that has a knock on effect of causing extea stress. Recently I tried to alter a cupboard…