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Dementia or the wrong diagnosis

Over the last few years we have heard of lots of people living with dementia, having their diagnosis of dementia being changed.

This is sometimes from one type of dementia, to another, or simply being told that you have not deteriorated fast enough, so the diagnosis is changed to mild cognitive impairment or something else.

Being diagnosed with this illness is bad enough, but then for someone else to come along and change it again leaves a lot to be desired, especially when they think its funny

The only change may be the term used, because more often than enough your symptoms are exactly the same, and no matter which way we look at it, there is nothing at all  mild about, Mild Cognitive Impairment, if your diagnosis is changed to that.

As one family doctor told us, these terms are changed by various hospitals and doctors etc, because they themselves don’t understand what is going on in your brain. 
Another consultant told us, the only answer will come when we die and our brain can be…

Raising awareness of Lewy Body dementia

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Are you considering a charity fundraising event in the future, or considering doing something positive as a New Years Resolution, if so  why not consider supporting the Lewy Body Society.
Charity events run through out the year, and range from small family events, to large local or national events, so please think of this wonderful charity if you want to do a charity run etc.
As an Ambassador with the Lewy Body Society, I would like to encourage people to support us in any way they can
This is a small charity which is totally dedicated to those living with, or  caring for someone with  Lewy Body Dementia in the United Kingdom 
We need all of the support we can get, so we can promote the charity, in the hope that we can get a higher profile for Lewy Body Dementia, and also for those living with this form of Dementia and their carers,  within the UK. 
So if you are considering doing a sponsored event for a wonderful caring charity, please come and support this wonderful charity, which …

Lewy Body Dementia

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Lewy Bodies Dementia Published: 05 August 2015Last Updated: 21 September 2018
Share this page Lewy Bodies Disease is similar to both Alzheimer's and Parkinson's diseases and can often be misdiagnosed. Specialist diagnosis is essential because sufferer's can have a reaction to the drugs used for other dementia diseases. Like other dementia diseases it sadly cannot be currently cured. However, with early diagnosis treatment can slow down the disease's progress.
What is dementia with Lewy bodies (DLB)? What are the symptoms of dementia with Lewy bodies? Mental symptoms similar to those of Alzheimer’s disease include: Problems with attention and alertnessSpatial disorientationDifficulties with planning and reasoningMemory loss – but to a lesser extent than with Alzheimer’s disease
Physical symptoms similar to those of Parkinson’s disease include: Slowness and stiffnessTrembling of the limbsShuffling when walkingLoss of facial expressionLoss of vocal strength
Other symptoms partic…

Lewy Bodies Dementia

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Lewy Bodies Dementia Published: 05 August 2015 Last Updated: 21 September 2018 Share this page
Lewy Bodies Disease is similar to both Alzheimer's and Parkinson's diseases and can often be misdiagnosed. Specialist diagnosis is essential because sufferer's can have a reaction to the drugs used for other dementia diseases. Like other dementia diseases it sadly cannot be currently cured. However, with early diagnosis treatment can slow down the disease's progress.
What is dementia with Lewy bodies (DLB)? What are the symptoms of dementia with Lewy bodies? Mental symptoms similar to those of Alzheimer’s disease include: Problems with attention and alertnessSpatial disorientationDifficulties with planning and reasoningMemory loss – but to a lesser extent than with Alzheimer’s disease
Physical symptoms similar to those of Parkinson’s disease include: Slowness and stiffnessTrembling of the limbsShuffling when walkingLoss of facial expressionLoss of vocal strength

Memory problems and photography

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I one main hobby which I really enjoy these days, and that is photography something which gives me a lot of satisfaction, on good and bad days as it is so relaxing, to look at without doing much. The second is photography, a hobby that I always enjoyed, even before the diagnosis, but now there are problems remembering the settings etc.
The pleasure I get from this hobby is quite something, and yes things can and will go wrong but with digital photography life is sometimes that bit easier, as the bad pictures can be removed rather than expensive processing only to find the photographs failed to come out or are blurred.
I have tried a few things to try to remember the settings, but I always get somewhere and either can not remember them, or can not find the paper with them on. This gets distressing, but I have to fight this as I get so much out of the hobby that I can not give up,
I have a few friends who also have dementia, who are very keen photographers and they seem to have similar…

New Type of Dementia is Found

I saw this today and wondered just how many other types of dementia are out there undiscovered
Doctors have newly outlined a type of dementia that could be more common than Alzheimer's among the oldest adults, according to a report published Tuesday in the journal Brain. The disease, called LATE, may often mirror the symptoms of Alzheimer's disease, though it affects the brain differently and develops more slowly than Alzheimer's. Doctors say the two are frequently found together, and in those cases may lead to a steeper cognitive decline than either by itself. In developing its report, the international team of authors is hoping to spur research -- and, perhaps one day, treatments -- for a disease that tends to affect people over 80 and "has an expanding but under-recognized impact on public health," according to the paper. "We're really overhauling the concept of what dementia is," said lead author Dr. Peter Nelson, director of neuropathology at t…