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Showing posts from August, 2017

Problems with antibiotics

Many of us have conditions where we need antibiotics, and some need more than others due to recurring chest  infectionsI confess that I hate these things, but due to recurring chest infections I end up with more than a lot of other people As well as having Lewy Body Dementia, I have Bilateral Bronchiectasis and Emphysema along with a life long bug in my lungs "Heamophilis Influenza "which does not seem to go away, meaning I am prone to chest infections.(All of this is a mouthful to remember, but it's all added to a phone app for called,   "ICE" In case of emergencies" which has my medical condition written down including medication. However many Doctors don't tell you the problems you could face,  if you are in a similar position, and need to take these drugs in a regular basis.It took a new  part time family doctor who also worked in s hospital,  to explain, that when you are taking these antibiotics for the likes of chest infections, you  need to tak…

Does driving need a review

During the last few weeks I have been staggered by the number of totally unfit people who are out driving on our roads, and no one stops them With this in mind I have brought back this old blog because do feel that it's time that the laws are changed..

Over the years people with neurological illnesses have been stopped from driving, because they were thought to be a hazard to others. Rightly or wrongly whichever way you look at this, I do feel that these people were victimised because of their illness, while others were allowed to carry on regardless.Having looked around these days, it is fairly obvious to many that the laws need changing, because there are many people driving, who are unfit to do so.In this day of free bus passes for the disabled and elderly, I do feel that the law needs tightening up to remove others from the road, and not simply pick on those with nuerological  illnesses.I have seen many people getting into or out of a car, when it's fairly obvious that they…

Maintaining Routines

Over the years many people have told us to set up and run a routine to get us through the day. But like other people, I know that this is easier said than  done,  on some days. I was originally told to set up a routine, after my diagnosis in  County Durham.This idea is that it makes life so much easier, getting things done during each day. However as i have found out on many occassions, it only takes a small distraction at the wrong time, and then things go haywireI have used the same system over the years, yet things still go wrong, especially if you are in a different environment or if you have visitors I have tried having settings on my mobile phone for my tablets,  but this again relys on you being in the right place at the right time.I have been distracted on many occasions, and this can be frustrating if you have forgotten to take your tablets in time etc. However there are other times that it can be embarrassing. I was once getting shaved when something happed. Later that morni…

Guidelines to halt dementia

When I read the guidelines for stopping or halting dementia the other week, I was left feeling as if something wrong, some where along the line It's taken me nearly two weeks to think this through, because I was unsure whether I had read and understood  it properly, but now I am ready to comment
Before this all started I was very active and walked quite a lot during each day, on top of doing my job. I found a note the other day in an old diary, where I walked or cycled  around 10 miles each day, sometimes 15 miles to and from work, yet a doctor giving me a medical examination, said that this was not being active enough. I dare say many doctors don't walk that far each day.My brain was kept active, because as a college engineer, I was always busy if I remember correctly, either planning, estimating, or doing something else which kept the brain active.  I was on call for breakdowns, and when I got home we were usually found in our allotment garden,  growing vegetables etc.
Like t…

Eyesight changes

Over the years I have had many problems with my eyes, yet the Eye specialists don't seem to recognise what is going on. Many don't seem to understand neurological illnesses,  like Parkinsons/ Lewy Body Dementia etc, all of which it seems can cause eyesight problems I never really  understood whether my problems were down to the eyes alone, or whether the brain and eyes were not working together. As someone said the other day, the brain recieves messages from the eyes etc, so it's down to how the brain uses these messages. I guess that's why I sometimes look at a road sign, shop sign, something in a book, or on television, and say the wrong place or word. I wonder if its all down to my brain is telling me the wrong thing. This is very disturbing at times, although I try  to laugh it off,  but it can be serious In some ways this explains my problems with moving staircases and marble floors etc, because the brain is getting the wrong messages, or is changing the messa…

Life changes at the diagnosis

I know they say you should never look back to things you have lost, but there are times when I feel it's not a bad thing,  because you understand the important things you have still got left in your life
However I still don't understand fully how I got to this stage.


I had been an engineer for 28 years running the maintenance department etc, along with two large budgets, as well as doing  estimating, and electrical work.
Then things went off the rails so to speak.
When things started to change during my diagnosis,  I had no idea how long it would last, or what would change in my life.
The answer to the first question was given by my consultant in County Durham,  "How long is a piece of string".
In other words, as my wife explained to me later, until we know, the correct type of illness, and how long the illness is going to take to  progress, we cannot tell.
We were also given a sheet of paper, with possible symptoms and problems which I could be faced with, but I …