Charity partnership on
nurse-led helpline for Lewy body dementia
23 July, 2018
By Steve FordEditor
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Comment
Two charities are today launching a new
collaboration to provide a helpline for those affected by Lewy body dementia,
which will be run by specialist nurses.
The Lewy Body Society and Dementia UK have set up a
new partnership to offer expert advice and information through the latter’s
existing Admiral Nurse Dementia Helpline.
“It is essential that people living with Lewy body
dementia and their carers have access to expert advice and information”
Jacqueline
Cannon
The helpline, which is run by Dementia UK for
anyone with a question or concern about dementia, is staffed seven days a week
by specialist dementia nurses and is free to call.
Lewy body dementia is the second most common form
of age-related neurodegenerative dementia. It is thought that around 130,000
people in the UK are living with it.
From today, when anyone affected by Lewy body
dementia who calls the Lewy Body Society will be directed to the Admiral Nurse
Dementia Helpline for advice and support.
Jacqueline Cannon, chief executive of the Lewy Body
Society, said: “It is essential that people living with Lewy body dementia and
their carers have access to expert advice and information, to help them
understand the disease and how to live with it.
“Rather than duplicating and providing this service
ourselves, we are delighted to partner with Dementia UK and signpost people
affected by Lewy body dementia to the excellent Admiral Nurse Dementia
Helpline,” she said.
She added: “This allows us to focus our efforts on
our core objectives of funding research into the diagnosis and treatment of
Lewy body dementia, and raising awareness of the disease.”
Paul Edwards, director of clinical services at
Dementia UK, said: “This is a valuable partnership in which the Lewy Body
Society is able to concentrate its efforts on research into this particular
type of dementia, while Dementia UK’s Admiral Nurses can provide the
compassionate and knowledgeable support and advice that families affected by
dementia need.”
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The Admiral Nurse Dementia Helpline
is available on 0800 888 6678 and is open Monday to Friday 9am-9pm and weekends
9am-5pm.
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I always say that we may have this illness, but we are all so different.
This is my own daily problems, but I would gladly share anyone elses, if they send them in,