Tuesday, 21 June 2016

Bronchiectasis Foundation


Cover Photo








The foundation

Improving the lives of people with Bronchiectasis is central to everything we do. We want everyone with the condition to live as full and unlimited a life as possible, until we find a cure.

Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. We invest in innovative research projects at the forefront of the field.

We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016.

Who we are

We are the Bronchiectasis Foundation, the only UK Charity dedicated to improving the lives of people with Bronchiectasis.

We are here to improve awareness and understanding of this condition, to support those affected, and ultimately, to find a cure through research.

We aim to support the 100,000 people who have Bronchiectasis in the UK. Our aim is to reach out to every single person who has a Bronchiectasis diagnosis, providing them with the information and support they need.

By creating connections between people with the condition and professionals, we aim to build a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about Bronchiectasis. We have a much stronger voice together.


Our vision

Our vision is to bring together and support those effected by Bronchiectasis, raise awareness and strive to improve treatments

Our mission
Our mission is to improve the lives of everyone affected by Bronchiectasis. We do this by investing in research, improving awareness and understanding of the condition and providing information and support to all those affected.

What we do

Improving the lives of people with Bronchiectasis is central to everything we do. We want everyone with the condition to live as full and unlimited a life as possible, until we find a cure.
Being there for our community when they need us is paramount - we do this through our helpline and our online platforms. We aim in the near future to run a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments a better quality of life and ultimately a cure. To invest in innovative research projects at the forefront of the field.
We also aim to make our voices heard with decision-makers within the NHS, pushing Bronchiectasis further up the health and social care agenda. The lack of awareness, late diagnosis and often years of wrong diagnosis ''Asthma in the case of many'' is simply not acceptable in the year 2016
The most important considerations for patients with bronchiectasis are the following:

1. They need to perform regular lung clearance techniques to prevent phlegm and bacteria accumulating in the lungs. Except for patients with mild bronchiectasis, this will probably need to be done once or twice a day.

2. When an infection develops, the patient needs to start antibiotics as quickly as possible as this allows the infection to be brought under control more rapidly than if the antibiotics are delayed. Most patients should therefore have a reserve course of antibiotics at home. And it is important that the antibiotics are taken for 10 to 14 days to ensure the infection is well-controlled and less likely to return when the antibiotics are stopped.

3. To help prevent infections, the patients should have an annual vaccination against flu, and be vaccinated against pneumonia. And they should never smoke cigarettes.

4. Some patients may need to take inhalers, nebulisers or continual low dose antibiotics as well.













Elderly and driving

After the news in the media during the last few days, I think it's time that elderly people had their eyes etc tested on a regular bas...