Saturday, 21 May 2016

Where is your wife

The other day I had an appointment at a local hospital, some thing which had been arranged for months, but it was within walking distance, so as far as I was concerned I was happy as it was a place I knew very well and was comfortable there.

However the day of the appointment my wife had a problem with one of her eyes, and after contacting the doctors she was told to go straight to the local eye hospital to get it checked out, because there was a worry that it could be a detached retina or something like that. 

So it was decided, that as it was too late to cancel the appointment, I would just go and take a tape recorder with me so, that my wife knew what happened 

The place was very noisy with loud music and loud voices, so in the end I turned the recorder off for a while.

However when I walked in to the room, I was confronted with a doctor asking where my wife was and why she was not there, as my notes said that I have memory problems?

Then he asked for the list of medication I was taking, but I remembered that my wife had taken it in the last time, and apart from one inhaler which I had in my pocket, nothing had changed. 

But he still insisted that a list should be taken to each appointment, for their use.

He then repeated that my wife should have been with me. 
At this s point I realised that nothing I said would have any effect, so I did not bite.

His pager went off and he spent time talking to some one else, which I thought was rude, but as he is a doctor I thought it might be urgent and let it go.

It was a total waste of time being there, but I did not want to attempt to cancel an appointment at the last minute, besides which my wife's eyes are very important especially as she is responsible for me.

While I admit that it is very important to have someone with us like our carer, when we have memory problems, in this case, there was no one else who could go with me and as I said, my wife's eyes are very important.

 What is more, there are far too many people not turning up for appointments, so I had no option, because getting through the hospital switchboard could have taken longer.

The NHS never stops amazing me, one minute they totally ignore carers, the the next moment they cannot do anything without them being present 

Friday, 20 May 2016

Just what happened

After being an engineer for many years, and being able to sort problems out all hours of the day, whether that was during the day or middle of the night, I am now at the stage where planning something can be distressing.

Most of the time it's near enough impossible to work out how to do things. 

Things like ironing which I got used to doing while my wife was in hospital for nearly three years on and off after a serious road accident. These days ironing is out of the question because I can never get the creases in the right place, but I think that's down to perception.

These were the days when I could multi task as I have been reminded many times.

Multitasking has long gone, as has my coordination which can be upsetting at times.

Sometimes simple things like putting shopping into a bag can be a minefield, because I usually end up struggling with the shopping bag hand holds. 

If someone had told me years ago, that I would struggle with simple things like that, I would have thought that they were stupid. 

I confess that the brain is very complex, but why things have changed like this I simply do not understand.
I was always right handed but now my left hand is faster a nd stronger

I never had problems with technology before, but now it's a struggle to learn new things, or even find the obvious things which are usually right in front of my nose.

At work I had two computers on my desk as my son kindly reminds me. One for reports, estimates and all of the normal stuff, while the other controlled all of the ventilation, heating systems boilers and pumps etc. 

Now I have to struggle with the tablet or computer on some days, other days I simply do not go there, but I guess that's life and I have to learn to live with it.

Thank goodness most computers have voice activation built in which makes life so much easier, just talking while the machine types it all out.

However one of the worst things these days are the supermarkets which are run by so called dementia friendly management and staff. 

Where you find loaded trollies full with goods ready for the shelves, around every corner of the shops blocking off areas and making life incredibly difficult, when you are struggling with your brain and perception. 

I do not usually go near to these places on a weekend because they seem to be full of idiots rushing round with trollies pushing people over, and being abusive if you happen to get in your way.

So much for these places being dementia friendly, I have to ask who trained them and whether they got the full course.

Thursday, 19 May 2016

Stunning scenery

This afternoon I went for a walk down through some woods in Barnard Castle.

I was completely staggered at the colours of the wild flowers while walking down the hill, there seemed to be a blanket of colour.

I could not get down to the bottom of the woods to get a better photograph, and was only carrying one lens so I was restricted
As a child living in the North of County Durham, we used to play in an area called bluebell woods, but I do not remember anything as spectacular as this.

I only go so far because I was feeling very chesty, but there must have been millions of blurlpbells covering the hillsides 

I was down here a lot last year, but never saw this vast expanse of colour, and everyone who stopped was talking about it looking so beautiful.

This is a stunning place where I enjoy sitting and watching nature in all its colours and beauty 
It's so peaceful and a lot of people love this area, because they can relax.

The downside wa the fact that I needed my inhaler to get back up the hill and back to the caravan, but I really enjoyed the walk, short as it was

To top it off I saw this cute baby rabbit with a white patch on its head. It seemed to ignore me at first and then hid its head as if it could not see me

Sunday, 15 May 2016

You cannot have dementia

A few years ago just after my diagnosis for early onset Lewy Body Dementia, I had problems with my water works, but as the consultant was unsure as to whether it was the Exelon causing it or not, I was sent to see a specialist in this subject.

Once I was there my wife asked if she could go with me to see the consultant because of my poor memory.

 It was agreed by the nurse, but when it came to the consultant, he refused saying that there did not seem to be anything wrong with me and certainly not dementia.

He even refused to discuss the Exelon, so it went no further as he was rude and arrogant.

When I saw the dementia consultant again, she looked at my wife in sheer horror and said, since when has the brain been in the bladder? and how can you tell by looking at someone that they have dementia?
 It is an illness which shows very few if any, visible signs, unlike a broken leg etc. 

After a few weeks a follow up letter came, suggesting three different hospitals where they looked into bladder problems. 

We chose a different hospital, where I received totally different treatment, and where the consultant was a gentleman who cared and discussed things with my wife.
He even spent time discussing the procedure with us both, and had a nurse with me at all times

Needless to say I have never been back to see the first consultant ever again.