Sunday, 19 March 2017

Lovely morning

On Saturday we went to Durham Cathedral to see the Treasures of St Cuthberts exhibition.

We were interested because our own Church, St Mary and St Cuthberts,  in Chester le Street was the original cathedral before Cuthberts coffin was moved to Durham.

I confess that I was not feeling too good, but we thought the change of air and exercise would do me good, so we went.

Getting up the hill took a few attempts because I was totally shattered, but in the end we got there.

I did not take my camera with me because of the need to get a permit which costs £15, but in all honesty I did not think I would be on a good state to use it when we got there.

So  I decided against taking it.

There is a small bus which runs to the cathedral from the bus station on most days, but we had missed it, and as the next one was half an hours wait, I decided that we should just go before the cathedral got too busy.

I enjoy being there because there is so much to see, and I never get tired of looking around as it's so big and full of history.

Next time we go, I will arrange for a photographic permit, and may well have a day there, so I can pace myself.

While we were there we saw a Cathedral stone Mason giving a demonstration of his work, and there were market traders selling local produce in the cloisters.

I can recommend this exhibition to anyone visiting the area, as it's a beautiful cathedral,  and the exhibition was stunning

When we got home I was very tired and slept for nearly two hours.

But it was a nice morning apart from my breathing problems

Friday, 17 March 2017

Health service in crisis

Over the last few months we have heard lots of stories about the health service being I a crisis and it makes me wonder when it will all end.

It seems that this government is moving money around from one place to another and I don't  every remember this happening before.

We came home from our daughters last night,  we found a letter from the chest consultant explaining that things were worse than we expected

It also stated the changes in medication for the Bronchiectasis/ Emphysema/ and Asbestos related problems, but did not state whether I had to stop my other inhalers etc.

So we thought it best to go and ask at our doctors first, to ask the questions, and then get the prescription

However this morning  when my wife went to ask for a doctors appointment, where we could ask about the changes to the medication, and whether I carry on taking the other inhalers as usual she was told that there was no doctors appointments for 3 -4 weeks?

They also said that the letter, "if they had received it," could be in the practise somewhere, but perhaps it had not been put onto the system as such.

So how on earth can I change medication,  when I don't understand if I have to stop taking the old medication

I find this whole set up completely unacceptable this day and age.

We also wanted to ask a doctor to explain what the consultants letter meant, but it seems that this is a total waste of time.

This proves that it not just hospitals in crisis mode but also doctors surgeries

This also proves a point when it comes to overworked Accident and Emergency hospitals.

If people cannot get an appointment at there doctors,  they going to head for the hospital, and to me it's totally wrong.

However I do wonder how many doctors surgeries are run solely by part time GPs these days.

Most of our doctors seem to be part time, rather than full time so perhaps things are changing.

No wonder the NHS is in such a mess.

Tuesday, 14 March 2017

New support group for Lung conditions

Support group for lung disease sufferers

A new support group is about to start for residents with lung conditions

                                                                                                                                                                                                                                  James Illingworth Email 15:33 Wednesday 01 March 2017
                                                                                                                                                                                                      A community support group for Wiganers who suffer from chronic respiratory problems will relaunch this month at a new venue.

Organisers are hoping to attract new membership and volunteers for the initiative which will offer advice and support to compliment medical treatment.

The inaugural meeting of the South Lancs Respiratory Support Group will take place at the Douglas Bank on Woodhouse Lane from 1pm. Bob Parry, who has formed the group, has organised community support schemes for residents with chronic obstructive pulmonary disease (COPD) for many years.

He said: “We’re hoping to attract new members to accompany those who have been part of our previous groups.

The meetings give people a sense of community to get out and share time with others with similar conditions.”COPD is an umbrella term to describe many progressive lung diseases such as emphysema, chronic bronchitis, asthma and forms of bronchiectasis.

Mr Parry’s groups - which are supported by the NHS - have also offered assistance to residents who suffer from sleep apnoea, a disorder characterized by pauses in breathing or instances of shallow or infrequent breathing during sleep.It will meet at the same venue on the first and third Wednesday of each month.

The borough has traditionally had comparatively high rates of lung disease due to its coal mining and cotton industry heritage although the number of cases has seen a steady decline in recent years. On a national level, a recent audit report claimed those suffering from COPD are being “failed” by the healthcare system.

Patients are regularly being admitted and discharged from hospitals on a “continuous cycle”, the latest National COPD Audit Programme report states.

The report, from the Royal College of Physicians, found that 43 per cent of patients admitted were readmitted at least once in the three months following discharge - a “considerable” increase in readmission rate.

They wrote: “The impression provided by the data is of a system that is not only stressed, but is ultimately failing COPD patients.”But the audit stresses there have “undoubtedly been improvements in COPD care”, with the percentage of patients dying in hospital decreasing.

Mr Parry said he is particularly in need of a new member who can perform the role of group secretary. For more information contact 07591496900.

Read more at:

Monday, 13 March 2017

Graduate nurses and Dementia

Today I managed to confirm the dates for going back to giving "Living with Lewy Body Dementia"  presentations to Graduate Nurses at Northumbria University

I have not been able to do this for a year or so because of the problems with the diagnosis, and my recurring chest infections.

But as my diagnosis is all sorted out, and my medication for chest problems is being sorted out so  I am now able to start again.

It's been a difficult time, but over the last two new months I have been able to get some control over my life again which is good

I do now, have the new diagnosis of "Emphysema" and "Bronchiectasis" along with the Lewy Body Dementia, but I am sure that this will sort itself out very soon once I get started on the new medication and physiotherapy or Pulmonary rehabilitation as it's called.

I do feel that it's very important talking to nurses like this, because they are able to get information from someone with the illness,  and that's more up to date than many text books these days.

These people need to know about all forms of dementia,  because whether we like it or not, some people have very graphic nightmares etc, and we don't want to be accused of aggressive behaviour, if someone tries to wake us up from a nightmare, and then ends up being hit,

Teaching about dementia etc, should cover all types of the illness, because far to many people including professionals, think that because they have seen one person with the illness, that they know it all

There are far to many combinations of this illness, and one size does not fit everyone.

As one professor once said, there are well over 130 variations of this illness, and everyone is different.

We are all individuals, with different problems and symptoms.

Each year I do around 6 one hour presentations,  as a visiting lecturer and that's good for me as well as for them.

It keeps me active and keeping my brain ticking over, which has to be good all round.