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Trevor Jarvis Friend and Mentor

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I had stopped writing this blog because of difficulties putting words down on paper. But after finding a new software, and way of doing things,  I decided to write a tribute to a dear old friend and Mentor,  Trevor Jarvis, who died suddenly after a short illness.
Although I am getting the words down, I cannot find a way to get photographs on the same page.
Still here goes
Trevor Jarvis 









A few weeks ago, Janice and I we went to a service to remember a dear old friend of mine, Trevor Jarvis
Trevor was very well known in the Dementia community, for all of his hard work in raising awareness, as an Ambassador with the Alzheimer's Society,   among so many other things, however,  Trevor was always accompanied where ever he went, by his lovely wife and friend Ann, who I am sure had so much to put up with.

Changes with in the NHS

The NHS is now discussing reforming the letters sent out by hospital doctors, in the hope of removing the jargon, 
The whole idea is to make these letters easy to understand by patients, without all of the medical jargon which comes within them,  but some doctors argue that these letters should be digital, thereby cutting costs, and by that, I guess emails
When will these officials ever accept that many people including elderly, do not understand computers etc, and therefore will not have access to digital letters
However as i said before, its not just the elderly, it covers quite a lot of people living within the UK many of who simply don't understand social media

Will these officials ever take this on board, or is this another way to keep people in the dark.
Considering the fact that most medical letters are written out by secretaries etc, not doctors, I wonder just what these people are hoping to achieve by this project.

Why blame the elderly for everything

Over the last few years we have heard the elderly being blamed for nearly everything that has gone wrong in the UK.
We were told that the problems within the NHS were all caused by the elderly who were blocking up the beds, even though in most cases, it's caused by the fact that many local authorities stopped providing social care. 
This in turn meant that those who cannot afford to pay for private care homes, and don't have any support at home are left in hospital after they have had a fall or have been ill, etc. 
But like it or not, this all goes back to the Government who have slashed the support and are starving the county council's, and this has the knock on effect.
It's certainly not the fault if the elderly but the government, and the vast cost of care homes, all of which have to pay their directors and shareholders etc.  
We must remember that many elderly people worked hard and paid their national insurance to cover our retirement, so its not our fault, but t…

Testing For Cognitive Decline Made Easier

Written by Brenda Kelly Kim

 In any form of disease, the sooner a diagnosis is found, the sooner treatment can begin.


Finding a health problem early is the best way to increase the chances of a good outcome. This is especially true in cognitive impairment. Whether it’s normal age-related memory issues, or something more severe, like Alzheimer’s, knowing where a patient is, cognitively, is crucial.
Diagnostic tests like looking for biomarkers in the blood are not available for most cases of dementia. Alzheimer’s has no definitive test that can say with the same certainty as an X-ray or other assays that there is a problem. Many patients must go through complex neuropsychological testing and detailed questionnaires on their health and habits. These kinds of tests are time-consuming and can be expensive as well. They are not entirely objective either, because confounding factors like IQ, socioeconomic status, and environmental factors such as places of residence. Estimates from the WHO …

Medical Bloopers

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I read this article when I was at the last Balance clinic in Chester le Streeet General Hospital Durham. It was in a newsletter written by the North Durham Parkinson's Society.
Yes I know that this is a serious topic  but, I keep looking at this and it keeps me laughing,




Sign of the Times

Recently I took the decision to step back, and retire from doing presentations and talks, because of ongoing medical  problems.

This was not taken lightly, because as well as talking about Lewy Body Dementia etc, I got quite a lot out of it, and met many new friends on the way. 

But over the last few months, I knew that things were changing and that included my health, so after  talking to my wife, it was decided that I should retire, and try to take things easy, while I try to get my back, hip and gait sorted out.

The Orthopedic consultant said that I was walking with a very odd gait, and wanted to work out what is causing it, as it could be related to either my brain or spine.

My walking has got a lot worse, and find it difficult to sit properly, or stand upright  for any length of time, so I guess I realised it was time to change things, before I caused an accident

My daughter is a biologist, so she is often involved in any decisions we make like this, because she understands thin…

Meaning of Hope

When I was undergoing my first diagnosis in Oxford, and was still working, I never let my religious beliefs go.
I suppose I was hoping that my religion would keep me going, and would save me from whatever was coming.


At this time most, clergy prayed for those who were sick, or dying, and it was generally accepted, because these people were usually seriously ill, either at home in bed or in hospital. 
However, I remember reading notes in my Office diary the other day, that I was at an Evening Service in Oxford and was staggered to hear the priest praying for me.
My wife said that I looked at her in disbelief, and perhaps shock, wondering why I was being prayed for, when I was in church.
I now understand that it is quite common, to pray for everyone who is ill these days, but I confess this did not help me at the time, and left me feeling very confused 

Originally, I had started going to this evening service because it was very quiet compared to the normal Sunday service, and easier to cope…

Raby Castle

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Recently my wife Daughter and I went for a walk round Raby Castle in County Durham, a favorite place for may in this area, as its a stunning castle, with vast grounds gardens, Deer Herds and Long Horned Cattle roaming around the meadows.


The castle is set within 200 acres of parkland in the heart of the beautiful Durham Dales

We always pass this castle on our way to our static caravan, and in some ways it always feels like home, because back in the 1960s I was there with the Scouts, and on one occasion we stayed somewhere within the castle during one winter, but to be honest I really don't remember where we were no, as so much time has passed

Raby was built by the mighty Nevills in the 14th century and is one of the finest preserved medieval castles

Since 1626 it been home to the current owner, Lord Barnard. The family are proud of their heritage and are passionate about sharing the families, history and collections with visitors


























                                  A bedroom believ…

Isle of Skye

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Early this year we had a wonderful holiday, with a church group, which went up to the Isle of Skye staying over at the White Heather Hotel in Kyleakin.  The Hotel was owned by a lovely couple, Gillian and Craig. who are very pleasant, and go out of their way to make sure that everyone has a wonderful holiday. We have been there on a few trips, and I can honestly say that we have enjoyed the tour each time we go, because everyone is so very friendly, even though I no longer attend church these days, but everyone makes me feel part of the group, and try to help me whenever they can   
 Some of the rooms look out over the harbour, and I confess that I am totally struck by Scotland, and this area , on the West Coast

 The harbour with the ruins of Caisteal Maol, Kyleakins own castle, which was built in the 1400s, Not much of it is left these days

                                                            Cawdor Castle and Gardens


                                                          …

Dementia and treating us with dignity and respect

Dementia and treating us with the dignity and respect ,that other people take for granted, and expect it from everyone else

Many people think that because they know or have looked someone with dementia, that they understand everything thing about it and know all about its problems.
But this is far from the truth and there are well over 120 variations of this illness, and in each case, the people with the the illness have different symptoms and struggle in different ways to others.
This causes confusion to many people, but as we now know there is nothing straight forward about this illness.
Treat us with the dignity and respect that you would expect from others
By educating and training people to understand the problems people with dementia struggle with on a daily basis, we will then start to see people with dementia being treated with the care and dignity, that you would want from others.
Please don’t patronize us by asking a question and then trying to answer it. Give us the chance t…