tag:blogger.com,1999:blog-7641598836349280199.post7315087247229307805..comments2024-03-22T06:07:04.856+00:00Comments on Living with Dementia and Comorbidities : DK books and the memoryLiving well with Lewy Body dementia/Parkinsons and Comorbiditieshttp://www.blogger.com/profile/06521672291947694295noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7641598836349280199.post-69300435691910162042016-05-03T19:57:16.122+01:002016-05-03T19:57:16.122+01:00Dear Penny
I confess that this is not an easy illn...Dear Penny<br />I confess that this is not an easy illness to cope with, but the photography gives me a reason to fight and try to achieve something positive.<br /><br />I struggle with Spiders at times, but I gather it's all part of the illness, trying to work out whether they are real of just hallucinations at times.<br /><br />We even had all of the carpets changed to try to stop this happening, but then I saw them on the walls etc, and it becomes very difficult to cope with.<br /><br />These spiders are terrifying at times, but my wife try's to help me overcome the fear.<br />Over the last year or so I have had balance problems, and have been sent to see another consultant who thinks it's all Parkinson related<br />I also struggle with very graphic nightmares, which seem to go on for hours on end. <br />If I do wake up I tend to go and sit in a different room in the hope that I can break free of the horrors. <br />However it has been known for the nightmares to start all of over again when I go back to bed.<br /><br />My wife tried to wake me up in the middle of one nightmare and she became part of it, and ended up with a black eye, which was horrible for me.<br />I am mow starting to struggle with my eyesight, and the consultant is looking into it, because he thinks it's all dementia related, and thinks that the brain is just not picking up my sight properly <br />This causes me to see people in front of me, but I cannot work out the facial features.<br />But as with all things we all have to fight on and hope.<br />Best wishes<br />KenLiving well with Lewy Body dementia/Parkinsons and Comorbiditieshttps://www.blogger.com/profile/06521672291947694295noreply@blogger.comtag:blogger.com,1999:blog-7641598836349280199.post-11296435467202409862016-05-02T17:06:21.273+01:002016-05-02T17:06:21.273+01:00How very thoughtful of your wife, Ken. It's ce...How very thoughtful of your wife, Ken. It's certainly given me the idea of searching for suitable DK books that may be of use to help my husband. He has been a great deal worse since he had 2 very difficult extractions at the dentist in December.<br /><br /> It was the first time anyone other than I had seen his strange behaviour (I was beginning to think the medics thought I was making it all up) But the dentist said he should see the Dr as she thought he having mini stroke <br />The Dr said he could see that "he is not his usual self " so we referred to hospital for assessment. <br /><br />The Daily Stroke Clinic Consultant, Pyschologist & Consultant at the Movement Disorder Clinic have said they can't rule out Lewy Body Dementia. From all my recent research he certainly seems to fit the pattern. Especially now he has had hallucinations about spiders several times. He finds them cute - not frightening. <br /><br />Penny Pincherhttps://www.blogger.com/profile/00993473608935875834noreply@blogger.com