However when you see the people queuing up, it's obvious that many don't feel comfortable using these machines.
Tuesday, 12 December 2017
However when you see the people queuing up, it's obvious that many don't feel comfortable using these machines.
Monday, 11 December 2017
Processing information and dementia Life can be very difficult at times when you were trying to process or understand what is happening around you.
I stopped going to meetings etc, because it took so long to understand and process, what was being said.
By the time I understood what had been said, it was too late to answer.
The same thing happens when I'm outside and I meet friends, or colleagues, and sometimes misunderstand what they have said.
This can be embarrassing, or can cause problems, because they may think that I am being rude .
Many friends and colleagues accept that I have an illness, and take me as I am, and if I make a mistake, they don't take offence, but not everyone is as understanding these days, and far too many, take it the wrong way without thinking or taking onboard my problems.
This is not intended, it's just a fact of life these days, and although upsetting, I have to accept it and move, on hoping that they understood my problem.
However it's not just the spoken word, it also happens with technology, my brain does not cope easily with modern technology.
Many people expect me to cope with games and gadgets on things like Facebook etc, when in fact, I simply don't understand them, and this is frustrating, not just for me, but I guess for others too.
This is also one reason why I don't play board games these days, because I need more time to process things, and people get annoyed and frustrated which does not help me, or them
This is i gather all down to my slow processing due to problems in my brain, although upsetting at times, I have to accept it, hoping that others will allow me time to process the information and answer in my own time.
In this fast moving world, people don't always allow us time to take on board what has been said, or what is happening, and then start to answer themselves, which in many ways is rude and patronising.
There are times when I struggle when I'm shopping, because I need to take on board what is happening around me, and that's not always easy, because people move so fast in all directions and speeds.
This in turn leads to balance problems, because I tend to feel unsteady, or lose my balance if someone walks in front of me, and that can make people assume I am drunk, when it's all down to balance processing the information in front of me.
There are times when this causes problems when I'm at the doctors, because I need to take on board what has been said by the doctor before I answer, but this is why my wife always comes with me, so she can answer questions I may get stuck with,
My wife has said that it may look as if I don't want to answer the questions myself, when in fact it's all down to my processing speed, or lack of it.
In fact being at the doctors can be very distressing these days, because I have to remember why i am there, and anything that's gone wrong, which is not always easy, especially when it comes to explaining them properly and clearly
Another problem these days, is the fact that I can't answer a simple question straight away, and need time to consider what has been said before I answer.
I know this causes problems at home, and my wife must get very agitated with my lack of response. Simple questions can cause problems at times, and it must upset my wife along with other people
There simply isn't anything I can do about it, I just have to think things through carefully and then answer.
I have been caught out many times, when someone has asked me a question, and I've answered wrongly, simply because I picked the question up the wrong way, I thought it meant something else.
Usually if my wife is there, she will support and correct me, and that in some way does help out, although it's upsetting to know that I've made possibly a bad mistake.
It also annoys me to understand that I occasionally need someone to correct or support me.
Things which used to be simple while I was working, like reading letters and emails, now cause problems, and I usually let my wife read them, before I go anywhere near to answering them, because I sometimes misunderstand what they are about, or what they are asking.
However loud music can also cause extra problems these days due him the fact that I seem to have acute hearing problems.
Shopping is a complete hazard these days, due to the fact that most shops seem to have loud music blasting out all of the time.
It's things like this which make me feel that I am starting to lose control of my life.
Tuesday, 5 December 2017
This lovely lady has seen scans to prove that her brain has shrunk, and although she was not given a lot of hope early on, she chose to fight on regardless, and has written books about her experience.
But I do suggest people join groups in they are available in your area, if not join a dementia charity and see what support they have in your area
Monday, 4 December 2017
This is only one case, but how many other people within society do not give people the respect they deserve
Its like many other illnesses like dementia where people look quite normal from the outside, but their brain has stopped working the way it should and they make mistakes, which many in society these days either don't understand or don't accept.
There are other Neurological illnesses these days, like Parkinson's, which are not recognised by many in society, and many believe that everyone who staggers around, or falls down is drunk or on drugs, when in fact it may well be their illness
Far too many people judge others before looking for the true answer, and that is very wrong
Everyone in this world should be treated with the same Dignity an Care, that others take for granted, however in reality this never happens these days.
Friday, 1 December 2017
But Ben would follow me closely when I was being diagnosed, and never let me out of his sight.
This was distressing for me as we had become so attached. We were then told that his liver had started to fail, and it would be better to put him out of his misery as he would have been struggling.
After talking to the vet later she told me something which left me in tears, because it was so moving, and as she said, was possibly very true.
Monday, 27 November 2017
Charity events run through out the year, and range from small family events, to large local or national events, so please think of this wonderful charity if you want to do a charity run etc.
The more people Who Know, The Fewer People Who Suffer
8 Albany Street
Telephone 0131 473 2385
Email : firstname.lastname@example.org
Press enquiries email@example.com
Friday, 24 November 2017
Tuesday, 21 November 2017
Monday, 20 November 2017
The other day some one asked this question on social media
I thought my life was coming to an end, when I was given the diagnosis of early onset Lewy body dementia, but my wife and daughter had other ideas, and without their support I would surely have given in altogether
This was before my second diagnosis after we had moved home, after losing my job.
I was then given this advice by the consultant.
If a hobby or job you have done for years, and you find that it can not be done on one day, leave it and try it on another day
If it fails on the second day, leave it and try on a third day
If it fails on the third day, leave well alone, and go on to try something new, otherwise you will end up being stressed and depressed, at losing the ability to do something
This was good advice and helped me to move on.
But this lady was a real professional who wanted to help her patients
Saturday, 18 November 2017
Photography keeps my brain active and allows me to take photographs of landscapes and wildlife, and to me that's very important.
Many people give everything up after a diagnosis of dementia, and simply give up the will to fight on.
But others keep going with the it hobbies for as long as they can, while some even learn to do other hobbies, or even learn a different language, which is good.
Over the years many of my hobbys have been given up, either because I forgot how to do them, or they became too dangerous to do any more.
As far as art is concerned I don't seem to be able to draw properly anymore, which is upsetting.
When I was an engineer I could go and look at a job of work, then I would sketch it out, and measure it up, knowing that I could work from the sketches etc. These days it's all gone and trying to sketch things is very hit and miss.
However I do still fight to hang on to using my computer and my camera, and although I can't always remember the settings, I am still determined to hang in a long as I can
Other people have other hobbies, which vary quite a lot.
I know someone who now carves walking sticks as a hobby, and that is amazing to hear about.
Others go walking with groups, or meet other friends in pubs etc, where they have a good time.
I do feel that it's up to us all to keep fighting for as long as we can, because the thought of giving up is a step too far.
Some people like singing for the brain these days. However although I was in a church choir for over 10 years, I no longer sing these days, because I cannot get out of my boots as far as my voice is concerned, so I would rather doing something that I can still enjoy doing.
Wednesday, 15 November 2017
Monday, 13 November 2017
Thursday, 9 November 2017
This sounds a really nice group, for people living with Dementia, because it inspires them to remain active, after their diagnosis, when its far too easy to sit back and do nothing.
To me this is everything a Dementia group should be, encouraging people to remain active, and I feel proud and honoured to know both Dave and Heather Roberts, who put so much time and effort, into running this wonderful group
The Hardy Group
Life doesn't end when dementia begins. Believe it or not, with the right support and stimulation, you can live well with dementia!
The Hardy Group is a thriving social group for people living with dementia who wish to stay active through a programme of events and social gatherings. It is made up of people with dementia and current and past carers who through their own experiences support each other along their journey with dementia. The group has a very wide age range from the under 60’s to the over 90’s!
We are run entirely by volunteers most of whom are living with, or have lived with, dementia themselves. Our income comes from grants, donations and fundraising and every penny goes on providing support for our members. It is all about having fun, living life as fully as we can, making new friends and supporting each other in a community built on common challenges and mutual understanding.
Through our social get -togethers and monthly days out we have created a sense of fun and excitement that helps motivate our members to keep on fighting the progression of symptoms and keep them out of the care system longer.
Social isolation is a major risk with dementia as the stigma of the disease frightens many people away. For some of our members our activities are the only times that they get out the house. Hardly surprising then that our coffee mornings regularly have over 120 attendees and that we need 2 coaches for our days out!
The mental stimulation and moral support that we provide is crucial. Our members are amongst like-minded friends so that they can be themselves. Nobody will judge them so they can let their hair down and have some fun. We laugh a lot and for a while at least it is possible to feel normal again. Everyone leaves our activities with a smile on their face.
Membership & Activities
Monday, 6 November 2017
Thursday, 2 November 2017
Over the last few years, a lot of work has been done in Banks to make them Dementia Friendly, but I do wonder if they have now had second ...
Lewy body dementia: Thousands 'at risk of injury or death' due to inappropriate prescription of antipsychotics Prescription of t...
Mild cognitive impairment (MCI) A condition that often predates Alzheimer's disease (AD), can be remotely detected through a self-a...
Lewy body dementia, an umbrella term for both Parkinson’s disease dementia and dementia with Lewy bodies By: Mohan Garikiparithi | ...